Literature DB >> 24113223

The assessment of the quality of life of adults with intellectual disability: the use of self-report and report of others assessment strategies.

Giulia Balboni1, Alessandra Coscarelli, Giulia Giunti, Robert L Schalock.   

Abstract

Assessment strategies that reliably and validly assess the indicators of quality of life (QOL) of individuals with intellectual disability (ID) are necessary for planning interventions and evaluating outcomes. In the present study, inter-rater reliability and concordance of the two assessment strategies report of others and self-report were evaluated in a group of 176 Italian adults with ID using the Personal Outcomes Scale, which employs the same QOL indicators in the self-report and report of others versions. Report of others resulted a reliable assessment strategy. Clients' point of view was compared with both the estimation of their point of view and third-party-point-of-view obtained by two independent caregivers for each client. Results indicated that both self-report and report of others assessment strategies are necessary and that estimation of the client's point of view may be a valid and reliable substitute of self-report when clients are not able to answer.
Copyright © 2013 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Assessment strategies; Quality of life; Report of others; Self-report

Mesh:

Year:  2013        PMID: 24113223     DOI: 10.1016/j.ridd.2013.09.009

Source DB:  PubMed          Journal:  Res Dev Disabil        ISSN: 0891-4222


  9 in total

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Journal:  Eur J Health Econ       Date:  2016-04-12

3.  Capturing the complexity of healthcare for people with Down syndrome in quality indicators - a Delphi study involving healthcare professionals and patient organisations.

Authors:  Francine A van den Driessen Mareeuw; Antonia M W Coppus; Diana M J Delnoij; Esther de Vries
Journal:  BMC Health Serv Res       Date:  2020-07-27       Impact factor: 2.655

Review 4.  Generic preference-based health-related quality of life in children with neurodevelopmental disorders: a scoping review.

Authors:  Ramesh Lamsal; Brittany Finlay; David G T Whitehurst; Jennifer D Zwicker
Journal:  Dev Med Child Neurol       Date:  2019-06-21       Impact factor: 5.449

5.  Quality of Life Outcomes in a Community Cohort of Adults With an Intellectual Disability Using the Personal Outcome Scale.

Authors:  Tom Burke; Andrew Deffew; Owen Stafford; Caroline Docherty; Sandra Burke; Remco Mostert; Jos van Loon; Marco Lombardi; Marianne Vaughan; Robert Brickell; Mary Keogh; Wendy Mahon; David O'Halloran
Journal:  Front Rehabil Sci       Date:  2022-03-25

6.  Validation of the Portuguese version of the Personal Outcomes Scale.

Authors:  Cristina Simões; Sofia Santos; Rui Biscaia
Journal:  Int J Clin Health Psychol       Date:  2015-12-31

7.  Psychometric properties of the Spanish version of the Personal Outcomes Scale.

Authors:  Maria Carbó-Carreté; Joan Guàrdia-Olmos; Climent Giné
Journal:  Int J Clin Health Psychol       Date:  2015-06-11

8.  People with intellectual disability who are ageing: Perceived needs assessment.

Authors:  María Ángeles Alcedo; Yolanda Fontanil; Patricia Solís; Ignacio Pedrosa; Antonio L Aguado
Journal:  Int J Clin Health Psychol       Date:  2016-10-13

9.  Is it feasible to assess self-reported quality of life in individuals who are deaf and have intellectual disabilities?

Authors:  Johannes Fellinger; Magdalena Dall; Joachim Gerich; Maria Fellinger; Katharina Schossleitner; William Joseph Barbaresi; Daniel Holzinger
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2020-09-14       Impact factor: 4.328

  9 in total

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