| Literature DB >> 24062419 |
Roberta S Rehm1, Lucille T Fisher, Elena Fuentes-Afflick, Catherine A Chesla.
Abstract
In an ethnographic study of planning for the transition to adulthood, we explored parental advocacy styles in special education settings for youth and young adults with chronic health conditions and developmental disabilities. Of 61 parents, 43 were satisfied with outcomes in negotiations for school services for their children. We identified three parental advocacy styles for these parents: (a) high-profile parents, who insisted on specific, wide-ranging services for their children that often resulted in conflict with educators; (b) strategic parents, who negotiated for selected goals and were willing to compromise, and (c) grateful-gratifier parents, who formed close relationships with educators and trusted them to make appropriate decisions. Eighteen parents were overwhelmed, burned out, or unfocused, and generally dissatisfied with outcomes of educational planning meetings. Professional efforts to enhance parental advocacy can target development of skills and strategies that have worked for successful negotiators.Entities:
Keywords: adolescents / youth; children, illness and disease; disability, developmental; ethnography; parenting; symbolic interactionism
Mesh:
Year: 2013 PMID: 24062419 PMCID: PMC4028223 DOI: 10.1177/1049732313505915
Source DB: PubMed Journal: Qual Health Res ISSN: 1049-7323