Literature DB >> 24062419

Parental advocacy styles for special education students during the transition to adulthood.

Roberta S Rehm1, Lucille T Fisher, Elena Fuentes-Afflick, Catherine A Chesla.   

Abstract

In an ethnographic study of planning for the transition to adulthood, we explored parental advocacy styles in special education settings for youth and young adults with chronic health conditions and developmental disabilities. Of 61 parents, 43 were satisfied with outcomes in negotiations for school services for their children. We identified three parental advocacy styles for these parents: (a) high-profile parents, who insisted on specific, wide-ranging services for their children that often resulted in conflict with educators; (b) strategic parents, who negotiated for selected goals and were willing to compromise, and (c) grateful-gratifier parents, who formed close relationships with educators and trusted them to make appropriate decisions. Eighteen parents were overwhelmed, burned out, or unfocused, and generally dissatisfied with outcomes of educational planning meetings. Professional efforts to enhance parental advocacy can target development of skills and strategies that have worked for successful negotiators.

Entities:  

Keywords:  adolescents / youth; children, illness and disease; disability, developmental; ethnography; parenting; symbolic interactionism

Mesh:

Year:  2013        PMID: 24062419      PMCID: PMC4028223          DOI: 10.1177/1049732313505915

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  10 in total

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Authors:  Roberta S Rehm; Elena Fuentes-Afflick; Lucille T Fisher; Catherine A Chesla
Journal:  ANS Adv Nurs Sci       Date:  2012 Jul-Sep       Impact factor: 1.824

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  10 in total
  3 in total

1.  A Case Review: Reframing School-Based Practices Using a Critical Perspective.

Authors:  Shanon K Phelan; Stella L Ng
Journal:  Phys Occup Ther Pediatr       Date:  2014-11-17       Impact factor: 2.360

2.  Comparing Parental Well-Being and Its Determinants Across Three Different Genetic Disorders Causing Intellectual Disability.

Authors:  Yuka Mori; Jenny Downs; Kingsley Wong; Jane Heyworth; Helen Leonard
Journal:  J Autism Dev Disord       Date:  2018-05

3.  Supporting children with disabilities at school: implications for the advocate role in professional practice and education.

Authors:  Stella L Ng; Lorelei Lingard; Kathryn Hibbert; Sandra Regan; Shanon Phelan; Rosamund Stooke; Christine Meston; Catherine Schryer; Madhushani Manamperi; Farah Friesen
Journal:  Disabil Rehabil       Date:  2015-09-04       Impact factor: 3.033

  3 in total

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