Literature DB >> 24058120

Patient and public involvement in health research: ethical imperative and/or radical challenge?

Diana Rose1.   

Abstract

Patient and public involvement in health research, including mental health research, is promoted by research funders in England. However, it is poorly conceptualised. One argument is that patient and public involvement in research is an ethical imperative because those who research is for should have a stake in how it is done. This could be developed through concepts of citizenship and democratic science. More strongly, it can be argued that changing the knowledge producers will change knowledge itself. Starting with feminist standpoint epistemology, it is argued that a political conceptualisation best captures the new knowledge that marginalised health groups can produce.

Entities:  

Keywords:  consumer involvement; health; mental health; power; research

Mesh:

Year:  2013        PMID: 24058120     DOI: 10.1177/1359105313500249

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  28 in total

1.  Evaluating capacity-building for mental health system strengthening in low- and middle-income countries for service users and caregivers, service planners and researchers.

Authors:  C Hanlon; M Semrau; A Alem; S Abayneh; J Abdulmalik; S Docrat; S Evans-Lacko; O Gureje; M Jordans; H Lempp; J Mugisha; I Petersen; R Shidhaye; G Thornicroft
Journal:  Epidemiol Psychiatr Sci       Date:  2017-08-31       Impact factor: 6.892

2.  Acceptability of Patient-Reported Outcome and Experience Measures for Hepatitis C Treatment Among People Who Use Drugs.

Authors:  Annie Madden; Max Hopwood; Joanne Neale; Carla Treloar
Journal:  Patient       Date:  2019-04       Impact factor: 3.883

3.  Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.

Authors:  Phoebe Friesen; Sapfo Lignou; Mark Sheehan; Ilina Singh
Journal:  Health Expect       Date:  2019-12-18       Impact factor: 3.318

4.  Application of a tool for the evaluation of public and patient involvement in research.

Authors:  Susan Jill Stocks; Sally J Giles; Sudeh Cheraghi-Sohi; Stephen M Campbell
Journal:  BMJ Open       Date:  2015-03-13       Impact factor: 2.692

5.  A little more conversation please? Qualitative study of researchers' and patients' interview accounts of training for patient and public involvement in clinical trials.

Authors:  Louise Dudley; Carrol Gamble; Alison Allam; Philip Bell; Deborah Buck; Heather Goodare; Bec Hanley; Jennifer Preston; Alison Walker; Paula Williamson; Bridget Young
Journal:  Trials       Date:  2015-04-27       Impact factor: 2.279

6.  "It is not just about the alcohol": service users' views about individualised and standardised clinical assessment in a therapeutic community for alcohol dependence.

Authors:  Paula Cristina Gomes Alves; Célia Maria Dias Sales; Mark Ashworth
Journal:  Subst Abuse Treat Prev Policy       Date:  2016-07-19

7.  Managing the transition (ManTra): a resource for persons with secondary progressive multiple sclerosis and their health professionals: protocol for a mixed-methods study in Italy.

Authors:  Ambra Mara Giovannetti; Andrea Giordano; Erika Pietrolongo; Paolo Confalonieri; Giovanna De Luca; Carla Tortorella; Maria Trojano; Michele Messmer Uccelli; Valentina Torri Clerici; Lara Gitto; Sascha Köpke; Claudia Borreani; Christoph Heesen; Alessandra Solari
Journal:  BMJ Open       Date:  2017-08-23       Impact factor: 2.692

8.  Perceptions of the uses of routine general practice data beyond individual care in England: a qualitative study.

Authors:  David Wyatt; Jenny Cook; Christopher McKevitt
Journal:  BMJ Open       Date:  2018-01-08       Impact factor: 2.692

9.  What's in a "research passport"? A collaborative autoethnography of institutional approvals in public involvement in research.

Authors:  Vito Laterza; David Evans; Rosemary Davies; Christine Donald; Cathy Rice
Journal:  Res Involv Engagem       Date:  2016-06-22

10.  Healthy publics: enabling cultures and environments for health.

Authors:  Stephen Hinchliffe; Mark A Jackson; Katrina Wyatt; Anne E Barlow; Manuela Barreto; Linda Clare; Michael H Depledge; Robin Durie; Lora E Fleming; Nick Groom; Karyn Morrissey; Laura Salisbury; Felicity Thomas
Journal:  Palgrave Commun       Date:  2018-05-15
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