Literature DB >> 24024817

What does the duty to warn require?

Seema K Shah1, Sara Chandros Hull, Michael A Spinner, Benjamin E Berkman, Lauren A Sanchez, Ruquyyah Abdul-Karim, Amy P Hsu, Reginald Claypool, Steven M Holland.   

Abstract

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Year:  2013        PMID： 24024817      PMCID： PMC4816221          DOI： 10.1080/15265161.2013.828528

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  7 in total

Review 1.  Research ethics and the challenge of whole-genome sequencing.

Authors:  Amy L McGuire; Timothy Caulfield; Mildred K Cho
Journal:  Nat Rev Genet       Date:  2008-02       Impact factor: 53.242

Review 2.  Process and outcome in communication of genetic information within families: a systematic review.

Authors:  Clara L Gaff; Angus J Clarke; Paul Atkinson; Stephanie Sivell; Glyn Elwyn; Rachel Iredale; Hazel Thornton; Joanna Dundon; Chris Shaw; Adrian Edwards
Journal:  Eur J Hum Genet       Date:  2007-07-04       Impact factor: 4.246

3.  ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure.

Authors: 
Journal:  Am J Hum Genet       Date:  1998-02       Impact factor: 11.025

4.  Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.

Authors:  Ben Chan; Flavia M Facio; Haley Eidem; Sara Chandros Hull; Leslie G Biesecker; Benjamin E Berkman
Journal:  Am J Bioeth       Date:  2012       Impact factor: 11.229

5.  The "duty to warn" a patient's family members about hereditary disease risks.

Authors:  Kenneth Offit; Elizabeth Groeger; Sam Turner; Eve A Wadsworth; Mary A Weiser
Journal:  JAMA       Date:  2004-09-22       Impact factor: 56.272

6.  American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

Authors: 
Journal:  J Clin Oncol       Date:  2003-04-11       Impact factor: 44.544

7.  ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.

Authors:  Robert C Green; Jonathan S Berg; Wayne W Grody; Sarah S Kalia; Bruce R Korf; Christa L Martin; Amy L McGuire; Robert L Nussbaum; Julianne M O'Daniel; Kelly E Ormond; Heidi L Rehm; Michael S Watson; Marc S Williams; Leslie G Biesecker
Journal:  Genet Med       Date:  2013-06-20       Impact factor: 8.822
  7 in total
  7 in total

1.  Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.

Authors:  Susan M Wolf; Rebecca Branum; Barbara A Koenig; Gloria M Petersen; Susan A Berry; Laura M Beskow; Mary B Daly; Conrad V Fernandez; Robert C Green; Bonnie S LeRoy; Noralane M Lindor; P Pearl O'Rourke; Carmen Radecki Breitkopf; Mark A Rothstein; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative.

Authors:  Kathryn M Porter; Marion Danis; Holly A Taylor; Mildred K Cho; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2018-01       Impact factor: 11.229

3.  Disclosure of psychiatric manifestations of 22q11.2 deletion syndrome in medical genetics: A 12-year retrospective chart review.

Authors:  Serena Talcott Baughman; Emily Morris; Kimberly Jensen; Jehannine Austin
Journal:  Am J Med Genet A       Date:  2015-05-31       Impact factor: 2.802

4.  International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access.

Authors:  Rebecca Branum; Susan M Wolf
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

5.  Research Recruitment of Adult Survivors of Neonatal Infections: Is There a Role for Parental Consent?

Authors:  Ann J Melvin; Kathleen M Mohan; Anna Wald; Kathryn Porter; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2015       Impact factor: 11.229

6.  Understanding What Information Is Valued By Research Participants, And Why.

Authors:  Consuelo H Wilkins; Brandy M Mapes; Rebecca N Jerome; Victoria Villalta-Gil; Jill M Pulley; Paul A Harris
Journal:  Health Aff (Millwood)       Date:  2019-03       Impact factor: 6.301

7.  Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey.

Authors:  Aslihan Akpinar; Nermin Ersoy
Journal:  BMC Med Ethics       Date:  2014-05-16       Impact factor: 2.652
  7 in total

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