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Literature DB >> 24022150

The ethics of participant-led biomedical research.

Effy Vayena¹, John Tasioulas.

Abstract

Entities: Species

Mesh：

Year: 2013 PMID： 24022150 DOI： 10.1038/nbt.2692

Source DB: PubMed Journal: Nat Biotechnol ISSN： 1087-0156 Impact factor: 54.908

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7 in total

1. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm.

Authors: Paul Wicks; Timothy E Vaughan; Michael P Massagli; James Heywood
Journal: Nat Biotechnol Date: 2011-04-24 Impact factor: 54.908

2. The power of social networking in medicine.

Authors: Catherine A Brownstein; John S Brownstein; David S Williams; Paul Wicks; James A Heywood
Journal: Nat Biotechnol Date: 2009-10 Impact factor: 54.908

3. Empirical evaluation of very large treatment effects of medical interventions.

Authors: Tiago V Pereira; Ralph I Horwitz; John P A Ioannidis
Journal: JAMA Date: 2012-10-24 Impact factor: 56.272

Review 4. From patients to partners: participant-centric initiatives in biomedical research.

Authors: Jane Kaye; Liam Curren; Nick Anderson; Kelly Edwards; Stephanie M Fullerton; Nadja Kanellopoulou; David Lund; Daniel G MacArthur; Deborah Mascalzoni; James Shepherd; Patrick L Taylor; Sharon F Terry; Stefan F Winter
Journal: Nat Rev Genet Date: 2012-04-03 Impact factor: 53.242

5. Health 2050: The Realization of Personalized Medicine through Crowdsourcing, the Quantified Self, and the Participatory Biocitizen.

Authors: Melanie Swan
Journal: J Pers Med Date: 2012-09-12

6. Adapting standards: ethical oversight of participant-led health research.

Authors: Effy Vayena; John Tasioulas
Journal: PLoS Med Date: 2013-03-12 Impact factor: 11.069

7. Research conducted using data obtained through online communities: ethical implications of methodological limitations.

Authors: A Cecile J W Janssens; Peter Kraft
Journal: PLoS Med Date: 2012-10-23 Impact factor: 11.069

7 in total

13 in total

Review 1. Ethical Considerations of Patient-Funded Research for Multiple Sclerosis Therapeutics.

Authors: Lilyana Amezcua; Flavia Nelson
Journal: Neurotherapeutics Date: 2017-10 Impact factor: 7.620

2. Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research.

Authors: Jeffrey P Kahn; Effy Vayena; Anna C Mastroianni
Journal: Proc Natl Acad Sci U S A Date: 2014-09-12 Impact factor: 11.205

3. "A cohort of pirate ships": biomedical citizen scientists' attitudes toward ethical oversight.

Authors: Meredith Trejo; Isabel Canfield; Whitney Bash Brooks; Alex Pearlman; Christi J Guerrini
Journal: Citiz Sci Date: 2021-05-20

4. Ethical challenges of big data in public health.

Authors: Effy Vayena; Marcel Salathé; Lawrence C Madoff; John S Brownstein
Journal: PLoS Comput Biol Date: 2015-02-09 Impact factor: 4.475

5. Research led by participants: a new social contract for a new kind of research.

Authors: Effy Vayena; Roger Brownsword; Sarah Jane Edwards; Bastian Greshake; Jeffrey P Kahn; Navjoyt Ladher; Jonathan Montgomery; Daniel O'Connor; Onora O'Neill; Martin P Richards; Annette Rid; Mark Sheehan; Paul Wicks; John Tasioulas
Journal: J Med Ethics Date: 2015-03-30 Impact factor: 2.903

Review 6. From Diabetes Care to Diabetes Cure-The Integration of Systems Biology, eHealth, and Behavioral Change.

Authors: Ben van Ommen; Suzan Wopereis; Pepijn van Empelen; Hilde M van Keulen; Wilma Otten; Marise Kasteleyn; Johanna J W Molema; Iris M de Hoogh; Niels H Chavannes; Mattijs E Numans; Andrea W M Evers; Hanno Pijl
Journal: Front Endocrinol (Lausanne) Date: 2018-01-22 Impact factor: 5.555