Literature DB >> 23966178

Anxiety and quality of life of parents with children diagnosed with an anorectal malformation or Hirschsprung disease.

Marieke Witvliet1, Christine Sleeboom1, Justin de Jong1, Anton van Dijk2, Sander Zwaveling3, Alida van der Steeg1.   

Abstract

AIM: The aim of this study was to investigate the difference in anxiety and quality of life (QOL) between mothers and fathers of children with anorectal malformations (ARM) or Hirschsprung disease (HD). In addition, anxiety of parents of newborns was compared with parents of children in the age-group of 10 to 13 years.
METHODS: Parents of 44 patients with ARM or HD completed the World Health Organization Quality of Life (WHOQOL)-BREF (26 items) and the Spielberger State-Trait Anxiety Inventory (STAI-trait 10 items, STAI-state 6 items). They were divided into two groups according to their children's age (0-4 years and 10-13 years).
RESULTS: Overall mothers scored significantly worse than fathers on state anxiety (p = 0.005). Trait anxiety was not significantly different between mothers and fathers. The psychological domain of the WHOQOL-BREF was significantly different between parents (p = 0.016), with mothers scoring worse. Dividing the group in newborns and school going children mothers of newborns showed significantly more state anxiety compared with fathers of newborns (p = 0.016). In the group of older children, both anxiety and QOL were not significantly different between fathers and mothers. Comparing mothers of newborns with mothers of older children, the first group scored higher on state anxiety, but this difference was not significant (p = 0.138; 95% confidence interval, 0.535-3.717).
CONCLUSIONS: Mothers of newborns have a higher level of anxiety than fathers of newborns with ARM or HD. When children with ARM or HD become older, this difference in anxiety between parents is not significant anymore. This may be explained by coping strategies. Georg Thieme Verlag KG Stuttgart · New York.

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Mesh:

Year:  2013        PMID: 23966178     DOI: 10.1055/s-0033-1353491

Source DB:  PubMed          Journal:  Eur J Pediatr Surg        ISSN: 0939-7248            Impact factor:   2.191


  5 in total

1.  Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation.

Authors:  Johannes Boettcher; Jonas Denecke; Claus Barkmann; Silke Wiegand-Grefe
Journal:  Int J Environ Res Public Health       Date:  2020-12-02       Impact factor: 3.390

2.  Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic.

Authors:  Mareike Fuerboeter; Johannes Boettcher; Claus Barkmann; Holger Zapf; Rojin Nazarian; Silke Wiegand-Grefe; Konrad Reinshagen; Michael Boettcher
Journal:  Orphanet J Rare Dis       Date:  2021-11-27       Impact factor: 4.123

3.  Distress and post-traumatic stress in parents of patients with congenital gastrointestinal malformations: a cross-sectional cohort study.

Authors:  D Roorda; A F W van der Steeg; M van Dijk; J P M Derikx; R R Gorter; J Rotteveel; J B van Goudoever; L W E van Heurn; J Oosterlaan; L Haverman
Journal:  Orphanet J Rare Dis       Date:  2022-09-11       Impact factor: 4.303

Review 4.  Being the Pillar for Children with Rare Diseases-A Systematic Review on Parental Quality of Life.

Authors:  Johannes Boettcher; Michael Boettcher; Silke Wiegand-Grefe; Holger Zapf
Journal:  Int J Environ Res Public Health       Date:  2021-05-08       Impact factor: 3.390

5.  Familial Experience With Hirschsprung's Disease Improves the Patient's Ability to Cope.

Authors:  Sanne J Verkuijl; Rob J Meinds; Alida F W van der Steeg; Cornelius E J Sloots; Ernst van Heurn; Ivo de Blaauw; Wim G van Gemert; Marieke J Witvliet; Karin M Vermeulen; Monika Trzpis; Paul M A Broens
Journal:  Front Pediatr       Date:  2022-03-07       Impact factor: 3.418

  5 in total

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