Literature DB >> 23944156

Paediatric palliative care: a review of needs, obstacles and the future.

Jackie Williams-Reade1, Angela L Lamson, Sharon M Knight, Mark B White, Sharon M Ballard, Priti P P Desai.   

Abstract

AIM: This literature review offers a response to the current paediatric palliative care literature that will punctuate the need for a framework (i.e. the three world view) that can serve as an evaluative lens for nurse managers who are in the planning or evaluative stages of paediatric palliative care programmes.
BACKGROUND: The complexities in providing paediatric palliative care extend beyond clinical practices to operational policies and financial barriers that exist in the continuum of services for patients. EVALUATION: This article offers a review of the literature and a framework in order to view best clinical practices, operational/policy standards and financial feasibility when considering the development and sustainability of paediatric palliative care programmes. KEY ASPECTS: Fifty-four articles were selected as representative of the current state of the literature as it pertains to the three world view (i.e. clinical, operational and financial factors) involved in providing paediatric palliative care.
CONCLUSION: In developing efficient paediatric palliative care services, clinical, operational and financial resources and barriers need to be identified and addressed. IMPLICATIONS FOR NURSING MANAGEMENT: Nursing management plays a crucial role in addressing the clinical, operational and financial needs and concerns that are grounded in paediatric palliative care literature.
© 2013 John Wiley & Sons Ltd.

Entities:  

Keywords:  nurse managers; organisational challenges; paediatric; palliative care; review

Mesh:

Year:  2013        PMID: 23944156     DOI: 10.1111/jonm.12095

Source DB:  PubMed          Journal:  J Nurs Manag        ISSN: 0966-0429            Impact factor:   3.325


  6 in total

1.  Continuing professional development for volunteers working in palliative care in a tertiary care cancer institute in India: a cross-sectional observational study of educational needs.

Authors:  Jayita Kedar Deodhar; Mary Ann Muckaden
Journal:  Indian J Palliat Care       Date:  2015 May-Aug

2.  Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands.

Authors:  Marije Brouwer; Els L M Maeckelberghe; Agnes van der Heide; Irma Hein; Eduard Verhagen
Journal:  BMJ Open       Date:  2020-06-28       Impact factor: 2.692

3.  Listening to Caregivers' Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients.

Authors:  Jinpitcha Mamom; Hanvedes Daovisan
Journal:  Int J Environ Res Public Health       Date:  2022-01-05       Impact factor: 3.390

4.  The Challenges, Coping Mechanisms, and the Needs of the Inhospital Parents Caring for Children with Life-limiting Neurological Disorders: A Qualitative Study.

Authors:  Fahisham Taib; Khoo Teik Beng; Lee Chee Chan
Journal:  Indian J Palliat Care       Date:  2021-11-11

5.  Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child.

Authors:  Katie Ekberg; Stuart Ekberg; Lara Weinglass; Anthony Herbert; Johanna Rendle-Short; Myra Bluebond-Langner; Patsy Yates; Natalie Bradford; Susan Danby
Journal:  Sociol Health Illn       Date:  2022-01-28

6.  Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS).

Authors:  Poh Heng Chong; Janice Soo; Zhi Zheng Yeo; Raymond Qishun Ang; Celene Ting
Journal:  BMC Palliat Care       Date:  2020-02-10       Impact factor: 3.234

  6 in total

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