Literature DB >> 23942759

Patients with rare diseases using pharmacists for medication information.

Delesha M Carpenter, Susan J Blalock, Robert F DeVellis.   

Abstract

OBJECTIVES: To determine whether patients with a rare illness (1) use pharmacists for medication information more or less frequently than physicians and the Internet, (2) perceive pharmacists as a more or less credible medical information resource than physicians and the Internet, and (3) obtain different types of medication information from pharmacists, physicians, and the Internet.
DESIGN: Cross-sectional survey.
SETTING: Online data collected between 2008 and 2009. PATIENTS: Adult, English-proficient vasculitis patients (n = 232) who were taking at least one medication to treat their vasculitis. INTERVENTION: Administration of online survey. MAIN OUTCOME MEASURES: Patient use of pharmacists, physicians, and the Internet for medication information; perceived credibility of pharmacists, physicians, and the Internet as sources of medication information; and types of medication information obtained from pharmacists, physicians, and the Internet.
RESULTS: Participants consulted physicians and the Internet more than pharmacists for medication information; only 96 participants (41.4%) ever used pharmacists for vasculitis medication information. Females and participants who used community pharmacies were significantly more likely to consult pharmacists for medication information as compared with males and patients who did not use community pharmacies. Participants perceived pharmacists were a less credible source of medication information than physicians and the Internet. Participants used physicians and/or the Internet more than pharmacists for five of eight types of medication information, including adverse effects and drug effectiveness.
CONCLUSION: Vasculitis patients consulted sources other than pharmacists for medication information. Several factors, including perceived pharmacist credibility and a noncommunity-based pharmacy, may contribute to infrequent patient use of pharmacists as a medication information source. Future qualitative research should document how patients with rare disease perceive and interact with pharmacists to understand why many view pharmacists as only moderately credible sources of medication information.

Entities:  

Mesh:

Year:  2012        PMID: 23942759      PMCID: PMC8989245          DOI: 10.1331/JAPhA.2012.12047

Source DB:  PubMed          Journal:  J Am Pharm Assoc (2003)        ISSN: 1086-5802


  28 in total

Review 1.  Rx medication information for the public and the WWW: quality issues.

Authors:  P Doupi; J van der Lei
Journal:  Med Inform Internet Med       Date:  1999 Jul-Sep

Review 2.  Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).

Authors:  Lila J Finney Rutten; Neeraj K Arora; Alexis D Bakos; Noreen Aziz; Julia Rowland
Journal:  Patient Educ Couns       Date:  2005-06

3.  Cancer-related information seeking: hints from the 2003 Health Information National Trends Survey (HINTS).

Authors:  Lila J Finney Rutten; Linda Squiers; Bradford Hesse
Journal:  J Health Commun       Date:  2006

4.  Cancer survivors information seeking behaviors: a comparison of survivors who do and do not seek information about cancer.

Authors:  Deborah K Mayer; Norma C Terrin; Gary L Kreps; Usha Menon; Kathy McCance; Susan K Parsons; Kathleen H Mooney
Journal:  Patient Educ Couns       Date:  2006-10-09

5.  Information needs and information-seeking behaviors of HIV positive men and women.

Authors:  J T Huber; J M Cruz
Journal:  Med Ref Serv Q       Date:  2000

6.  The impact of vasculitis on patients' social participation and friendships.

Authors:  Delesha M Carpenter; Amy E Meador; Emily A Elstad; Susan L Hogan; Robert F DeVellis
Journal:  Clin Exp Rheumatol       Date:  2012-05-10       Impact factor: 4.473

7.  Sources of medicine information and their reliability evaluated by medicine users.

Authors:  Ulla Närhi
Journal:  Pharm World Sci       Date:  2007-05-04

8.  Wegener's granulomatosis: patient-reported effects of disease on health, function, and income.

Authors:  G S Hoffman; Y Drucker; M F Cotch; G A Locker; K Easley; K Kwoh
Journal:  Arthritis Rheum       Date:  1998-12

9.  Patient sources of drug information and attitudes to their provision: a corticosteroid model.

Authors:  Vivian F Trewin; G Brian Veitch
Journal:  Pharm World Sci       Date:  2003-10

10.  The role of an online community for people with a rare disease: content analysis of messages posted on a primary biliary cirrhosis mailinglist.

Authors:  Judith N Lasker; Ellen D Sogolow; Rebecca R Sharim
Journal:  J Med Internet Res       Date:  2005-03-31       Impact factor: 5.428

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.