Literature DB >> 23941073

The importance of patient engagement.

Janet K Williams, Sandra Daack-Hirsch, Martha Driessnack, Nancy R Downing, Christian Simon.   

Abstract

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Mesh：

Year:  2013        PMID： 23941073      PMCID： PMC3761425          DOI： 10.1089/gtmb.2013.0346

Source DB:  PubMed          Journal:  Genet Test Mol Biomarkers        ISSN： 1945-0257


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  4 in total

1.  Don't just invite us to the table: authentic community engagement.

Authors:  Sharon F Terry
Journal:  Genet Test Mol Biomarkers       Date:  2013-06

2.  "I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing.

Authors:  Anne Townsend; Shelin Adam; Patricia H Birch; Zoe Lohn; Francois Rousseau; Jan M Friedman
Journal:  Am J Med Genet A       Date:  2012-08-17       Impact factor: 2.802

3.  'Information is information': a public perspective on incidental findings in clinical and research genome-based testing.

Authors:  S Daack-Hirsch; M Driessnack; A Hanish; V A Johnson; L L Shah; C M Simon; J K Williams
Journal:  Clin Genet       Date:  2013-05-03       Impact factor: 4.438

4.  The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice.

Authors:  Martha Driessnack; Sandra Daack-Hirsch; Nancy Downing; Alyson Hanish; Lisa L Shah; Mohammed Alasagheirin; Christian M Simon; Janet K Williams
Journal:  J Community Genet       Date:  2013-04-10
  4 in total
  1 in total

1.  Engagement and communication among participants in the ClinSeq Genomic Sequencing Study.

Authors:  Gillian W Hooker; Kendall L Umstead; Katie L Lewis; Laura K Koehly; Leslie G Biesecker; Barbara B Biesecker
Journal:  Genet Med       Date:  2016-10-20       Impact factor: 8.822
  1 in total

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