Literature DB >> 23939035

Acceptance of epilepsy surgery in the pediatric age - what the parents think and what the doctors can do.

Giuseppe Erba1, Paolo Messina, Elisabetta Pupillo, Ettore Beghi.   

Abstract

Epilepsy surgery (ES) in pediatrics is safe and effective but can be underutilized. Possible barriers could be parental resistance and doctor inertia. We surveyed 138 parents of pediatric patients with epilepsy and found that 25.2% were opposed to this treatment. However, upon completing the questionnaire that contained factual information about ES, 50.4% of the responders stated that they had become more favorable vs. 3.3% more contrary and 46.3% unchanged. Parents of prepubescent patients were most receptive (p=0.0343) and more likely to shift to a more favorable attitude. Thus, pediatric neurologists should not hesitate to discuss ES as soon as indicated, providing all necessary information to increase acceptance. However, among 60 child neurologists surveyed, 60% did not fully comply with guidelines or follow accepted standards of practice, indicating that they may not be apt to provide proper parental guidance. We conclude that education of both practicing neurologists and parents is needed to facilitate the process.
Copyright © 2013 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Medical decision-making; Parental attitude; Patient education; Pediatric epilepsy surgery; Physician education; Physicians' attitudes; Questionnaire; Survey

Mesh:

Year:  2013        PMID: 23939035     DOI: 10.1016/j.yebeh.2013.05.039

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  7 in total

1.  "A journey around the world": Parent narratives of the journey to pediatric resective epilepsy surgery and beyond.

Authors:  Christine B Baca; Huibrie C Pieters; Tomoko J Iwaki; Gary W Mathern; Barbara G Vickrey
Journal:  Epilepsia       Date:  2015-04-20       Impact factor: 5.864

2.  Epilepsy surgery in childhood: no longer the treatment of last resort.

Authors:  George M Ibrahim; James T Rutka; O Carter Snead
Journal:  CMAJ       Date:  2014-06-09       Impact factor: 8.262

Review 3.  Parental experience and decision-making for epilepsy surgery: A systematic review of qualitative and quantitative studies.

Authors:  Debopam Samanta; Megan Leigh Hoyt; M Scott Perry
Journal:  Epilepsy Behav       Date:  2021-08-21       Impact factor: 3.337

4.  Physicians' Perspectives on Presurgical Discussion and Shared Decision-Making in Pediatric Epilepsy Surgery.

Authors:  Debopam Samanta; Adam P Ostendorf; Rani Singh; Satyanarayana Gedela; Vimala Elumalai; Megan Leigh Hoyt; M Scott Perry; Luca Bartolini; Geoffrey M Curran
Journal:  J Child Neurol       Date:  2022-03-21       Impact factor: 2.363

Review 5.  Underutilization of epilepsy surgery: Part I: A scoping review of barriers.

Authors:  Debopam Samanta; Adam P Ostendorf; Erin Willis; Rani Singh; Satyanarayana Gedela; Ravindra Arya; M Scott Perry
Journal:  Epilepsy Behav       Date:  2021-02-18       Impact factor: 2.937

Review 6.  Underutilization of epilepsy surgery: Part II: Strategies to overcome barriers.

Authors:  Debopam Samanta; Rani Singh; Satyanarayana Gedela; M Scott Perry; Ravindra Arya
Journal:  Epilepsy Behav       Date:  2021-03-04       Impact factor: 2.937

7.  Choice and Trade-offs: Parent Decision Making for Neurotechnologies for Pediatric Drug-Resistant Epilepsy.

Authors:  Viorica Hrincu; Patrick J McDonald; Mary B Connolly; Mark J Harrison; George M Ibrahim; Robert P Naftel; Winston Chiong; Armaghan Alam; Urs Ribary; Judy Illes
Journal:  J Child Neurol       Date:  2021-06-02       Impact factor: 1.987

  7 in total

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