Literature DB >> 23919367

Relationships hold the key to trustworthy and productive translational science: recommendations for expanding community engagement in biomedical research.

Mark Yarborough1, Kelly Edwards, Paula Espinoza, Gail Geller, Alok Sarwal, Richard Sharp, Paul Spicer.   

Abstract

Good relationships between research institutions and communities are an essential, but often neglected, part of the infrastructure of translational science. In an effort to create greater interest among translational science researchers in cultivating relationships with community members, we report the results of a workshop we convened to learn how relationships vital to research are best created and sustained. We highlight common barriers and challenges that hinder relationships. We also provide recommendations that individual research institutions and teams can use to expand and strengthen their relationships with community members. The improved relationships between universities and communities that could result from their implementation should build greater public trust in biomedical research, lead to a stronger commitment to see it succeed, and engender shared values and commitments that will give rise to new rewards, recognition and admonishment to sustain those values and commitments over time, all of which would facilitate translational science.

Entities:  

Keywords:  ethics; translational research

Mesh:

Year:  2013        PMID: 23919367      PMCID: PMC4019385          DOI: 10.1111/cts.12022

Source DB:  PubMed          Journal:  Clin Transl Sci        ISSN: 1752-8054            Impact factor:   4.689


  7 in total

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Journal:  Acad Med       Date:  2012-07       Impact factor: 6.893

2.  Beyond "compliance": the role of institutional culture in promoting research integrity.

Authors:  Gail Geller; Alison Boyce; Daniel E Ford; Jeremy Sugarman
Journal:  Acad Med       Date:  2010-08       Impact factor: 6.893

3.  Translational and clinical science--time for a new vision.

Authors:  Elias A Zerhouni
Journal:  N Engl J Med       Date:  2005-10-12       Impact factor: 91.245

4.  Transforming the culture of biomedical research from compliance to trustworthiness: insights from nonmedical sectors.

Authors:  Mark Yarborough; Kelly Fryer-Edwards; Gail Geller; Richard R Sharp
Journal:  Acad Med       Date:  2009-04       Impact factor: 6.893

Review 5.  Transforming genetic research practices with marginalized communities: a case for responsive justice.

Authors:  Sara Goering; Suzanne Holland; Kelly Fryer-Edwards
Journal:  Hastings Cent Rep       Date:  2008 Mar-Apr       Impact factor: 2.683

6.  Community advisory boards in community-based participatory research: a synthesis of best processes.

Authors:  Susan D Newman; Jeannette O Andrews; Gayenell S Magwood; Carolyn Jenkins; Melissa J Cox; Deborah C Williamson
Journal:  Prev Chronic Dis       Date:  2011-04-15       Impact factor: 2.830

7.  Community-based participatory research: lessons learned from the Centers for Children's Environmental Health and Disease Prevention Research.

Authors:  Barbara A Israel; Edith A Parker; Zachary Rowe; Alicia Salvatore; Meredith Minkler; Jesús López; Arlene Butz; Adrian Mosley; Lucretia Coates; George Lambert; Paul A Potito; Barbara Brenner; Maribel Rivera; Harry Romero; Beti Thompson; Gloria Coronado; Sandy Halstead
Journal:  Environ Health Perspect       Date:  2005-10       Impact factor: 9.031

  7 in total
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Journal:  Transl Behav Med       Date:  2021-03-16       Impact factor: 3.046

2.  A paradigm for understanding trust and mistrust in medical research: The Community VOICES study.

Authors:  M Smirnoff; I Wilets; D F Ragin; R Adams; J Holohan; R Rhodes; G Winkel; E M Ricci; C Clesca; L D Richardson
Journal:  AJOB Empir Bioeth       Date:  2018-02-16

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4.  Teaching Type 1 Diabetes: Creating Stakeholder Engagement in Biomedical Careers Through Undergraduate Research Curriculum.

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5.  Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology.

Authors:  Cynthia E Schairer; Sanjay R Mehta; Staal A Vinterbo; Martin Hoenigl; Michael Kalichman; Susan J Little
Journal:  AJOB Empir Bioeth       Date:  2019-05-03

6.  Lessons Learned from Three Models that Use Small Grants for Building Academic-Community Partnerships for Research.

Authors:  Michelle C Kegler; Daniel S Blumenthal; Tabia Henry Akintobi; Kirsten Rodgers; Katherine Erwin; Winifred Thompson; Ernest Hopkins
Journal:  J Health Care Poor Underserved       Date:  2016

7.  The science of stakeholder engagement in research: classification, implementation, and evaluation.

Authors:  Melody S Goodman; Vetta L Sanders Thompson
Journal:  Transl Behav Med       Date:  2017-09       Impact factor: 3.046

8.  The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project.

Authors:  Keith A Anderson; Holly Dabelko-Schoeny; Sokha Koeuth; Katherine Marx; Laura N Gitlin; Joseph E Gaugler
Journal:  Home Health Care Serv Q       Date:  2020-08-31

9.  The Northwest Participant and Clinical Interactions Network: Increasing opportunities for patients to participate in research across the Northwestern United States.

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Journal:  J Clin Transl Sci       Date:  2017-04-19

10.  Engaging multi-stakeholder perspectives to identify dementia care research priorities.

Authors:  Neela K Patel; Sara S Masoud; Kylie Meyer; Angelica V Davila; Sheran Rivette; Ashlie A Glassner; Deborah James; Carole L White
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