Literature DB >> 23909830

Caring for people with early and advanced chronic obstructive pulmonary disease: how do family carers cope?

Daniela Figueiredo1, Raquel Gabriel, Cristina Jácome, Alda Marques.   

Abstract

AIMS AND
OBJECTIVES: To examine the coping strategies of family carers of people with early and advanced chronic obstructive pulmonary disease and how those relate to their subjective health.
BACKGROUND: Caring for a family member with chronic obstructive pulmonary disease can be a stressful experience. Understanding how carers cope with this is critical for improving outcomes. However, this topic has received little attention in the literature, particularly considering the care-giving experience with early chronic obstructive pulmonary disease.
DESIGN: A cross-sectional study with a convenience sample of family carers of people with chronic obstructive pulmonary disease.
METHODS: A structured questionnaire was used to collect data on socio-demographics and care-giving characteristics. Self-rated physical and mental health was measured by two items from the International Classification of Functioning, Disability and Health checklist. Coping strategies were assessed with the Carers' Assessment of Managing Index. Descriptive and inferential analyses were performed.
RESULTS: A total of 158 family carers participated: 109 caring for people with early and 49 with advanced chronic obstructive pulmonary disease. The two groups differed significantly on self-rated mental health and on problem-solving, emotional-cognitive and managing stress coping type. Significant correlations between self-rated physical health and problem-solving coping and between self-rated mental health and emotion-cognitive and managing stress coping were found for carers of patients with advanced chronic obstructive pulmonary disease.
CONCLUSIONS: This study provides a unique insight into family carer coping strategies at different stages of chronic obstructive pulmonary disease. Carers of people with early and advanced chronic obstructive pulmonary disease cope differently with their caring demands. Nevertheless, problem-focused coping strategies were perceived as the most helpful by both groups. RELEVANCE TO CLINICAL PRACTICE: The findings are relevant to informing early supportive interventions aiming to prevent burden and promote healthy adjustment to care-giving demands within the specific context of chronic obstructive pulmonary disease.
© 2013 John Wiley & Sons Ltd.

Entities:  

Keywords:  chronic obstructive pulmonary disease; coping; family carers

Mesh:

Year:  2013        PMID: 23909830     DOI: 10.1111/jocn.12363

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  8 in total

1.  An observational, longitudinal study on the home environment of people with chronic obstructive pulmonary disease: the research protocol of the Home Sweet Home study.

Authors:  Nienke Nakken; Daisy J A Janssen; Esther H A van den Bogaart; Jan H Vercoulen; Emiel F M Wouters; Martijn A Spruit
Journal:  BMJ Open       Date:  2014-11-10       Impact factor: 2.692

Review 2.  Assessing carer needs in chronic obstructive pulmonary disease.

Authors:  Morag Farquhar
Journal:  Chron Respir Dis       Date:  2017-07-07       Impact factor: 2.444

3.  "It's like being on a roller coaster": the burden of caring for people with severe asthma.

Authors:  Eleanor C Majellano; Vanessa L Clark; Juliet M Foster; Peter G Gibson; Vanessa M McDonald
Journal:  ERJ Open Res       Date:  2021-04-12

4.  Care-seeking and delay of care during COPD exacerbations.

Authors:  Emily R Locke; Jessica P Young; Catherine Battaglia; Tracy L Simpson; Ranak Trivedi; Carol Simons; John C Fortney; Paul Hebert; Erik R Swenson; Jeffrey Edelman; Vincent S Fan
Journal:  NPJ Prim Care Respir Med       Date:  2022-02-15       Impact factor: 3.289

5.  Caregiver Experiences and Roles in Care Seeking During COPD Exacerbations: A Qualitative Study.

Authors:  Madhuvanthi Suresh; Jessica Young; Vincent Fan; Carol Simons; Catherine Battaglia; Tracy L Simpson; John C Fortney; Emily R Locke; Ranak Trivedi
Journal:  Ann Behav Med       Date:  2022-03-01

6.  Strategies for coping with family members of patients with mental disorders.

Authors:  Daniele Alcalá Pompeo; Arélica de Carvalho; Aline Morgado Olive; Maria da Graça Girade Souza; Sueli Aparecida Frari Galera
Journal:  Rev Lat Am Enfermagem       Date:  2016-09-09

Review 7.  Coping and adjustment in caregivers: A systematic review.

Authors:  Tamsyn Hawken; Julie Turner-Cobb; Julie Barnett
Journal:  Health Psychol Open       Date:  2018-11-09

8.  'Who Cares?' The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods systematic review.

Authors:  Miriam Catherine Noonan; Jennifer Wingham; Rod S Taylor
Journal:  BMJ Open       Date:  2018-07-11       Impact factor: 2.692

  8 in total

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