Literature DB >> 23859354

Computerized assessment of competence-related abilities in living liver donors: the Adult-to-Adult Living Donor Liver Transplantation Cohort Study.

Jason Freeman1, Jean Emond, Brenda W Gillespie, Paul S Appelbaum, Robert Weinrieb, Peg Hill-Callahan, Elisa J Gordon, Norah Terrault, James Trotter, April Ashworth, Mary Amanda Dew, Timothy Pruett.   

Abstract

BACKGROUND: Despite its importance, determination of competence to consent to organ donation varies widely based on local standards. We piloted a new tool to aid transplant centers in donor assessment.
METHODS: We assessed competence-related abilities among potential living liver donors (LDs) in the nine-center A2ALL study. Prospective LDs viewed an educational video and were queried to assess Understanding, Appreciation, Reasoning, and ability to express a Final Choice using the MacArthur Competence Assessment Tool for Clinical Research, adapted for computerized administration in LDs ("MacLiver"). Videotaped responses were scored by a clinical neuropsychologist (JF).
RESULTS: Ninety-three LDs were assessed. Mean (standard deviation; domain maximum) scores were as follows: Understanding: 18.1 (2.6; max = 22), Appreciation: 5.1 (1.0; max = 6), Reasoning: 3.1 (0.8; max = 4), and Final Choice: 3.8 (0.5; max = 4). Scores did not differ by demographics, relationship to the recipient, eligibility to donate, or eventual donation (p > 0.4). Higher education was associated with greater Understanding (p = 0.004) and Reasoning (p = 0.03).
CONCLUSION: Standardized, computerized education with independent ratings of responses may (1) alert the clinical staff to potential donors who may not be competent to donate and (2) highlight areas needing further assessment and education, leading to better informed decision making.
© 2013 John Wiley & Sons A/S.

Entities:  

Keywords:  MacArthur Competence Assessment Tool for Clinical Research; comprehension; ethics; informed consent; living donation; transplantation

Mesh:

Year:  2013        PMID: 23859354      PMCID: PMC4096778          DOI: 10.1111/ctr.12184

Source DB:  PubMed          Journal:  Clin Transplant        ISSN: 0902-0063            Impact factor:   2.863


  24 in total

1.  Decisional capacity for informed consent in schizophrenia research.

Authors:  W T Carpenter; J M Gold; A C Lahti; C A Queern; R R Conley; J J Bartko; J Kovnick; P S Appelbaum
Journal:  Arch Gen Psychiatry       Date:  2000-06

2.  (Almost) everything you ever wanted to know about informed consent. [Review of: Faden, RR and Beauchamp, TL. A history and theory of informed concsent. New York and Oxford: Oxford University Press, 1986].

Authors:  A M Capron
Journal:  Med Humanit Rev       Date:  1987-01

3.  Decisional capacity of depressed elderly to consent to electroconvulsive therapy.

Authors:  Maria I Lapid; Teresa A Rummans; V Shane Pankratz; Paul S Appelbaum
Journal:  J Geriatr Psychiatry Neurol       Date:  2004-03       Impact factor: 2.680

4.  The NEO-PI-3: a more readable revised NEO Personality Inventory.

Authors:  Robert R McCrae; Paul T Costa; Thomas A Martin
Journal:  J Pers Assess       Date:  2005-06

5.  The ethics statement of the Vancouver Forum on the live lung, liver, pancreas, and intestine donor.

Authors:  Timothy L Pruett; Annika Tibell; Abdulmajeed Alabdulkareem; Mahendra Bhandari; David C Cronin; Mary Amanda Dew; Arturo Dib-Kuri; Thomas Gutmann; Arthur Matas; Lisa McMurdo; Axel Rahmel; S Adibul Hasan Rizvi; Linda Wright; Francis L Delmonico
Journal:  Transplantation       Date:  2006-05-27       Impact factor: 4.939

6.  A report of the Vancouver Forum on the care of the live organ donor: lung, liver, pancreas, and intestine data and medical guidelines.

Authors:  Mark L Barr; Jacques Belghiti; Federico G Villamil; Elizabeth A Pomfret; David S Sutherland; Rainer W Gruessner; Alan N Langnas; Francis L Delmonico
Journal:  Transplantation       Date:  2006-05-27       Impact factor: 4.939

7.  Intent-to-treat analysis for longitudinal studies with drop-outs.

Authors:  R Little; L Yau
Journal:  Biometrics       Date:  1996-12       Impact factor: 2.571

8.  Laboratory test results after living liver donation in the adult-to-adult living donor liver transplantation cohort study.

Authors:  James F Trotter; Brenda W Gillespie; Norah A Terrault; Michael M Abecassis; Robert M Merion; Robert S Brown; Kim M Olthoff; Paul H Hayashi; Carl L Berg; Robert A Fisher; James E Everhart
Journal:  Liver Transpl       Date:  2011-04       Impact factor: 5.799

9.  Competence of depressed patients for consent to research.

Authors:  P S Appelbaum; T Grisso; E Frank; S O'Donnell; D J Kupfer
Journal:  Am J Psychiatry       Date:  1999-09       Impact factor: 18.112

10.  Closing the loop: physician communication with diabetic patients who have low health literacy.

Authors:  Dean Schillinger; John Piette; Kevin Grumbach; Frances Wang; Clifford Wilson; Carolyn Daher; Krishelle Leong-Grotz; Cesar Castro; Andrew B Bindman
Journal:  Arch Intern Med       Date:  2003-01-13
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  2 in total

Review 1.  Psychiatric aspects of organ transplantation and donation.

Authors:  Sarah Faeder; Darcy Moschenross; Emily Rosenberger; Mary Amanda Dew; Andrea DiMartini
Journal:  Curr Opin Psychiatry       Date:  2015-09       Impact factor: 4.741

2.  Decision aids for organ transplant candidates.

Authors:  Elisa J Gordon; Michael G Ison
Journal:  Liver Transpl       Date:  2014-07       Impact factor: 5.799

  2 in total

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