Literature DB >> 23843631

Discrepancies in mother and child perceptions of spina bifida medical responsibilities during the transition to adolescence: associations with family conflict and medical adherence.

Alexandra M Psihogios1, Grayson N Holmbeck.   

Abstract

OBJECTIVE: This study investigated mother-child discrepancies over perceptions of who is responsible for spina bifida (SB) medical tasks in relation to family conflict and medical adherence.
METHOD: 140 youth with SB and their mothers completed questionnaires regarding who is responsible for specific SB medical tasks, family conflict, and medical adherence. An observational measure was also used to assess family conflict.
RESULTS: Although children viewed themselves as more responsible for medical management than mothers did, mother-child discrepancies were not associated with family conflict or medical adherence. Interaction effects revealed that adherence was better when family conflict was low and when parents were responsible for medical tasks.
CONCLUSIONS: Parental involvement in SB medical care is essential for optimal medical adherence during adolescence. The presence of family conflict also plays an influential role on SB medical adherence. Future research should evaluate the relations between discrepancies, family conflict, and medical adherence across time.

Entities:  

Keywords:  adherence; adolescents; assessment; family functioning; spina bifida

Mesh:

Year:  2013        PMID: 23843631      PMCID: PMC3895972          DOI: 10.1093/jpepsy/jst047

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  29 in total

1.  Condition severity and psychosocial functioning in pre-adolescents with spina bifida: disentangling proximal functional status and distal adjustment outcomes.

Authors:  J S Hommeyer; G N Holmbeck; K E Wills; S Coers
Journal:  J Pediatr Psychol       Date:  1999-12

Review 2.  Collecting and managing multisource and multimethod data in studies of pediatric populations.

Authors:  Grayson N Holmbeck; Susan T Li; Jennifer Verrill Schurman; Deborah Friedman; Rachael Millstein Coakley
Journal:  J Pediatr Psychol       Date:  2002 Jan-Feb

3.  A multimethod, multi-informant, and multidimensional perspective on psychosocial adjustment in preadolescents with spina bifida.

Authors:  Grayson N Holmbeck; Venette C Westhoven; Wendy Shapera Phillips; Rachael Bowers; Christine Gruse; Tina Nikolopoulos; Christine M Wienke Totura; Kenneth Davison
Journal:  J Consult Clin Psychol       Date:  2003-08

4.  Parent-adolescent discrepancies in adolescents' competence and the balance of adolescent autonomy and adolescent and parent well-being in the context of Type 1 diabetes.

Authors:  Jonathan Butner; Cynthia A Berg; Peter Osborn; Jorie M Butler; Carine Godri; Katie T Fortenberry; Ilana Barach; Hai Le; Deborah J Wiebe
Journal:  Dev Psychol       Date:  2009-05

5.  Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion.

Authors:  Marjolein Verhoef; Hans A Barf; Marcel W M Post; Floris W A van Asbeck; Rob H J M Gooskens; Arie J H Prevo
Journal:  Dev Med Child Neurol       Date:  2006-02       Impact factor: 5.449

6.  A power primer.

Authors:  J Cohen
Journal:  Psychol Bull       Date:  1992-07       Impact factor: 17.737

7.  Assessing family sharing of diabetes responsibilities.

Authors:  B J Anderson; W F Auslander; K C Jung; J P Miller; J V Santiago
Journal:  J Pediatr Psychol       Date:  1990-08

8.  Observed and perceived parental overprotection in relation to psychosocial adjustment in preadolescents with a physical disability: the mediational role of behavioral autonomy.

Authors:  Grayson N Holmbeck; Sharon Z Johnson; Karen E Wills; Wendy McKernon; Brigid Rose; Shannon Erklin; Therese Kemper
Journal:  J Consult Clin Psychol       Date:  2002-02

9.  Psychometric properties and normative data for the parent version of the diabetes independence survey.

Authors:  T Wysocki; P M Meinhold; A Taylor; B S Hough; M U Barnard; W L Clarke; B J Bellando; M J Bourgeois
Journal:  Diabetes Educ       Date:  1996 Nov-Dec       Impact factor: 2.140

10.  Parent and adolescent distribution of responsibility for diabetes self-care: links to health outcomes.

Authors:  Vicki S Helgeson; Kerry A Reynolds; Linda Siminerio; Oscar Escobar; Dorothy Becker
Journal:  J Pediatr Psychol       Date:  2007-09-10
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  13 in total

1.  Resilience and Disruption in Observed Family Interactions in Youth With and Without Spina Bifida: An Eight-Year, Five-Wave Longitudinal Study.

Authors:  Jaclyn M Lennon; Caitlin B Murray; Colleen F Bechtel; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2015-04-24

2.  Condition Self-Management in Pediatric Spina Bifida: A Longitudinal Investigation of Medical Adherence, Responsibility-Sharing, and Independence Skills.

Authors:  Alexandra M Psihogios; Victoria Kolbuck; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2015-05-22

3.  Testing the Utility of a Bio-Neuropsychosocial Model for Predicting Medical Adherence and Responsibility During Early Adolescence in Youth With Spina Bifida.

Authors:  Alexandra M Psihogios; Caitlin Murray; Kathy Zebracki; Laura Acevedo; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2017-10-01

4.  Relation of parent knowledge to glycemic control among emerging adults with type 1 diabetes: a mediational model.

Authors:  Vicki S Helgeson; Abigail Kunz Vaughn; Howard Seltman; Trevor Orchard; Dorothy Becker; Ingrid Libman
Journal:  J Behav Med       Date:  2017-09-16

5.  Development of an Observational Parental Scaffolding Measure for Youth with Spina Bifida.

Authors:  Adrien M Winning; Colleen Stiles-Shields; Colleen F Bechtel Driscoll; Diana M Ohanian; Autumn N Crowe; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2020-07-01

6.  Social Skills and Medical Responsibility Across Development in Youth With Spina Bifida.

Authors:  Colleen Stiles-Shields; Kezia C Shirkey; Adrien M Winning; Zoe R Smith; Elicia Wartman; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2021-03-18

7.  Family Functioning and Medical Adherence Across Children and Adolescents With Chronic Health Conditions: A Meta-Analysis.

Authors:  Alexandra M Psihogios; Heather Fellmeth; Lisa A Schwartz; Lamia P Barakat
Journal:  J Pediatr Psychol       Date:  2019-01-01

8.  Close relationships and the management of chronic illness: Associations and interventions.

Authors:  Lynn M Martire; Vicki S Helgeson
Journal:  Am Psychol       Date:  2017-09

9.  Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.

Authors:  Mariam Kayle; David I Chu; Alexa Stern; Wei Pan; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2020-11-01

10.  Factor Structure of Medical Autonomy Scales in Young People with Spina Bifida.

Authors:  Zoe R Smith; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2021-07-20
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