Literature DB >> 23823892

Linking Canadian population health data: maximizing the potential of cohort and administrative data.

Dany Doiron1, Parminder Raina, Isabel Fortier.   

Abstract

Linkage of data collected by large Canadian cohort studies with provincially managed administrative health databases can offer very interesting avenues for multidisciplinary and cost-effective health research in Canada. Successfully co-analyzing cohort data and administrative health data (AHD) can lead to research results capable of improving the health and well-being of Canadians and enhancing the delivery of health care services. However, such an endeavour will require strong coordination and long-term commitment between all stakeholders involved. The challenges and opportunities of a pan-Canadian cohort-to-AHD data linkage program have been considered by cohort study investigators and data custodians from each Canadian province. Stakeholders acknowledge the important public health benefits of establishing such a program and have established an action plan to move forward.

Entities:  

Keywords:  Medical record linkage; data collection; public health

Mesh:

Year:  2013        PMID: 23823892      PMCID: PMC3880355          DOI: 10.17269/cjph.104.3775

Source DB:  PubMed          Journal:  Can J Public Health        ISSN: 0008-4263


  10 in total

1.  Policy analysis in an information-rich environment.

Authors:  Leslie L Roos; Verena Menec; R J Currie
Journal:  Soc Sci Med       Date:  2004-06       Impact factor: 4.634

2.  The Canadian Partnership for Tomorrow Project: building a pan-Canadian research platform for disease prevention.

Authors:  Marilyn J Borugian; Paula Robson; Isabel Fortier; Louise Parker; John McLaughlin; Bartha Maria Knoppers; Karine Bédard; Richard P Gallagher; Sandra Sinclair; Vincent Ferretti; Heather Whelan; David Hoskin; John D Potter
Journal:  CMAJ       Date:  2010-04-26       Impact factor: 8.262

Review 3.  Administrative record linkage as a tool for public health research.

Authors:  Douglas P Jutte; Leslie L Roos; Marni D Brownell
Journal:  Annu Rev Public Health       Date:  2011       Impact factor: 21.981

4.  A decade of data linkage in Western Australia: strategic design, applications and benefits of the WA data linkage system.

Authors:  C D'Arcy J Holman; A John Bass; Diana L Rosman; Merran B Smith; James B Semmens; Emma J Glasson; Emma L Brook; Brooke Trutwein; Ian L Rouse; Charles R Watson; Nicholas H de Klerk; Fiona J Stanley
Journal:  Aust Health Rev       Date:  2008-11       Impact factor: 1.990

5.  Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest.

Authors:  Caitlin Pencarrick Hertzman; Nancy Meagher; Kimberlyn M McGrail
Journal:  J Am Med Inform Assoc       Date:  2012-08-30       Impact factor: 4.497

6.  DataSHIELD: resolving a conflict in contemporary bioscience--performing a pooled analysis of individual-level data without sharing the data.

Authors:  Michael Wolfson; Susan E Wallace; Nicholas Masca; Geoff Rowe; Nuala A Sheehan; Vincent Ferretti; Philippe LaFlamme; Martin D Tobin; John Macleod; Julian Little; Isabel Fortier; Bartha M Knoppers; Paul R Burton
Journal:  Int J Epidemiol       Date:  2010-07-14       Impact factor: 7.196

7.  The Canadian longitudinal study on aging (CLSA).

Authors:  Parminder S Raina; Christina Wolfson; Susan A Kirkland; Lauren E Griffith; Mark Oremus; Christopher Patterson; Holly Tuokko; Margaret Penning; Cynthia M Balion; David Hogan; Andrew Wister; Hélène Payette; Harry Shannon; Kevin Brazil
Journal:  Can J Aging       Date:  2009-09

8.  From health research to social research: privacy, methods, approaches.

Authors:  Leslie L Roos; Marni Brownell; Lisa Lix; Noralou P Roos; Randy Walld; Leonard MacWilliam
Journal:  Soc Sci Med       Date:  2007-10-04       Impact factor: 4.634

9.  A Protocol for the secure linking of registries for HPV surveillance.

Authors:  Khaled El Emam; Saeed Samet; Jun Hu; Liam Peyton; Craig Earle; Gayatri C Jayaraman; Tom Wong; Murat Kantarcioglu; Fida Dankar; Aleksander Essex
Journal:  PLoS One       Date:  2012-07-02       Impact factor: 3.240

10.  Cohort profile: cohort of Norway (CONOR).

Authors:  Oyvind Naess; Anne Johanne Søgaard; Egil Arnesen; Anne Cathrine Beckstrøm; Espen Bjertness; Anders Engeland; Peter F Hjort; Jostein Holmen; Per Magnus; Inger Njølstad; Grethe S Tell; Lars Vatten; Stein Emil Vollset; Geir Aamodt
Journal:  Int J Epidemiol       Date:  2007-11-04       Impact factor: 7.196

  10 in total
  13 in total

1.  Design, methods and demographics from phase I of Alberta's Tomorrow Project cohort: a prospective cohort profile.

Authors:  Paula J Robson; Nathan M Solbak; Tiffany R Haig; Heather K Whelan; Jennifer E Vena; Alianu K Akawung; William K Rosner; Darren R Brenner; Linda S Cook; Ilona Csizmadi; Karen A Kopciuk; S Elizabeth McGregor; Christine M Friedenreich
Journal:  CMAJ Open       Date:  2016-09-29

2.  The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention.

Authors:  Trevor J B Dummer; Philip Awadalla; Catherine Boileau; Camille Craig; Isabel Fortier; Vivek Goel; Jason M T Hicks; Sébastien Jacquemont; Bartha Maria Knoppers; Nhu Le; Treena McDonald; John McLaughlin; Anne-Marie Mes-Masson; Anne-Monique Nuyt; Lyle J Palmer; Louise Parker; Mark Purdue; Paula J Robson; John J Spinelli; David Thompson; Jennifer Vena; Ma'n Zawati
Journal:  CMAJ       Date:  2018-06-11       Impact factor: 8.262

3.  Process monitoring of an HIV treatment as prevention program in British Columbia, Canada.

Authors:  Lillian Lourenço; Viviane D Lima; Kate Heath; Bohdan Nosyk; Mark Gilbert; Guillaume Colley; Theodora Consolacion; Rolando Barrios; Robert Hogg; Mel Krajden; Stephanie Konrad; Michelle Murti; Joanne Nelson; Jennifer May-Hadford; James Haggerstone; Neora Pick; Reka Gustafson; Melanie Rusch; Irene Day; Julio S G Montaner
Journal:  J Acquir Immune Defic Syndr       Date:  2014-11-01       Impact factor: 3.731

4.  Assessing data linkage quality in cohort studies.

Authors:  Katie Harron; James C Doidge; Harvey Goldstein
Journal:  Ann Hum Biol       Date:  2020-03       Impact factor: 1.533

5.  Individual and community-level income and the risk of diabetes rehospitalization among women and men: a Canadian population-based cohort study.

Authors:  Neeru Gupta; Dan L Crouse; Adele Balram
Journal:  BMC Public Health       Date:  2020-01-14       Impact factor: 3.295

6.  UK phenomics platform for developing and validating electronic health record phenotypes: CALIBER.

Authors:  Spiros Denaxas; Arturo Gonzalez-Izquierdo; Kenan Direk; Natalie K Fitzpatrick; Ghazaleh Fatemifar; Amitava Banerjee; Richard J B Dobson; Laurence J Howe; Valerie Kuan; R Tom Lumbers; Laura Pasea; Riyaz S Patel; Anoop D Shah; Aroon D Hingorani; Cathie Sudlow; Harry Hemingway
Journal:  J Am Med Inform Assoc       Date:  2019-12-01       Impact factor: 4.497

7.  Research using population-based administration data integrated with longitudinal data in child protection settings: A systematic review.

Authors:  Fadzai Chikwava; Reinie Cordier; Anna Ferrante; Melissa O'Donnell; Renée Speyer; Lauren Parsons
Journal:  PLoS One       Date:  2021-03-24       Impact factor: 3.240

8.  Creating Clinical Cohorts: Challenges Encountered in Two Canadian Provinces.

Authors:  Esther S Shoemaker; Marissa L Becker; Clare E Liddy; Leigh M McClarty; Shabnam Asghari; Jillian Hurd; Sean B Rourke; Souradet Y Shaw; Christine Bibeau; Ron Rosenes; Philip Lundrigan; Lois Crowe; Laurie Ireland; Carla Loeppky; Claire E Kendall
Journal:  Healthc Policy       Date:  2019-08

9.  Multi-province epidemiological research using linked administrative data: a case study from Canada.

Authors:  Amanda Leanne Butler; Mark Smith; Wayne Jones; Carol E Adair; Simone N Vigod; Alain Lesage; Paul Kurdyak
Journal:  Int J Popul Data Sci       Date:  2018-09-21

Review 10.  Opportunities and Challenges for Genetic Studies of End-Stage Renal Disease in Canada.

Authors:  Vinusha Kalatharan; Mathieu Lemaire; Matthew B Lanktree
Journal:  Can J Kidney Health Dis       Date:  2018-07-22
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