Literature DB >> 23806303

Key issues of daily life in adults with congenital heart disease.

Magalie Ladouceur1, Laurence Iserin, Sarah Cohen, Antoine Legendre, Younes Boudjemline, Damien Bonnet.   

Abstract

Increasing survival rates of patients with congenital heart disease have resulted in a new and growing patient population of adults with operated congenital heart disease. Medical professionals face the specific medical needs of these patients but must also deal with their daily life issues. Adult patients with congenital heart disease report difficulties in several areas of daily life, such as sport, employment, insurability and travel or driving. Moreover, they must have a healthy lifestyle to prevent cardiovascular complications. All these issues can be addressed in a specific educational program. In this review, we discuss the different daily life issues of adults with congenital heart disease and the preventive measures that can be proposed to improve their quality of life.
Copyright © 2013 Elsevier Masson SAS. All rights reserved.

Entities:  

Keywords:  ACHD; Adult congenital heart disease; CAD; CHD; Cardiopathie congénitale de l’adulte; Education; Lifestyle; Quality of life; Qualité de vie; Reconnaissance Qualité Travailleur Handicapé; Style de vie; TQTH; VO(2); adult congenital heart disease; congenital heart disease; coronary artery disease; oxygen uptake.; Éducation

Mesh:

Year:  2013        PMID: 23806303     DOI: 10.1016/j.acvd.2013.02.004

Source DB:  PubMed          Journal:  Arch Cardiovasc Dis        ISSN: 1875-2128            Impact factor:   2.340


  8 in total

1.  Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.

Authors:  Maryanne Caruana; Silke Apers; Adrienne H Kovacs; Koen Luyckx; Corina Thomet; Werner Budts; Maayke Sluman; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Bengt Johansson; Alexandra Soufi; Edward Callus; Philip Moons; Victor Grech
Journal:  Pediatr Cardiol       Date:  2017-03-24       Impact factor: 1.655

Review 2.  So hard to say goodbye: transition from paediatric to adult cardiology care.

Authors:  Adrienne H Kovacs; Brian W McCrindle
Journal:  Nat Rev Cardiol       Date:  2013-11-12       Impact factor: 32.419

3.  Occupational challenges of young adult patients with congenital heart disease.

Authors:  M A Sluman; S de Man; B J M Mulder; J K Sluiter
Journal:  Neth Heart J       Date:  2014-05       Impact factor: 2.380

4.  Health-related quality of life in congenital heart disease surgery patients in Pakistan: protocol for a mixed-methods study.

Authors:  Laila Akbar Ladak; Babar Sultan Hasan; Janice Gullick; Khadija Awais; Ahmed Abdullah; Robyn Gallagher
Journal:  BMJ Open       Date:  2017-10-30       Impact factor: 2.692

5.  Educational attainment in patients with congenital heart disease: a comprehensive systematic review and meta-analysis.

Authors:  Lucia Cocomello; Arnaldo Dimagli; Giovanni Biglino; Rosie Cornish; Massimo Caputo; Deborah A Lawlor
Journal:  BMC Cardiovasc Disord       Date:  2021-11-19       Impact factor: 2.298

6.  Chinese Parents' Perceptions, Attitudes, and Treatment-Seeking Intentions Toward Congenital Heart Disease with Charitable Assistance: A Cross-Sectional Study in a Congenital Heart Center in Southern China.

Authors:  Wen-Peng Xie; Jian-Feng Liu; Yu-Qing Lei; Hua Cao; Qiang Chen
Journal:  Patient Prefer Adherence       Date:  2021-11-05       Impact factor: 2.711

7.  Weight impacts 1-year congenital heart surgery outcomes independent of race/ethnicity and payer.

Authors:  Saira Siddiqui; Brett R Anderson; Damien J LaPar; David Kalfa; Paul Chai; Emile Bacha; Lindsay Freud
Journal:  Cardiol Young       Date:  2020-11-19       Impact factor: 1.093

8.  Patient and physician view on patient information and decision-making in congenital aortic and pulmonary valve surgery.

Authors:  Jonathan R G Etnel; Willem A Helbing; Jolien W Roos-Hesselink; Regina The; Ad J J C Bogers; Johanna J M Takkenberg
Journal:  Open Heart       Date:  2018-11-10
  8 in total

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