Literature DB >> 23802898

The apomediated world: regulating research when social media has changed research.

Dan O'Connor1.   

Abstract

Social Media, like Facebook and Twitter, are having a profound effect on the way that human subjects research is being conducted. In light of the changes proposed in ANPRM, in this article I argue that traditional research ethics and regulations may not easily translate to the use of social media in human subjects research. Using the conceptual model of apomediation, which describes the peer-to-peer way in which health information is shared via social media, I suggest that we may need to think again about the suitability of current regulations to deal with social media research.
© 2013 American Society of Law, Medicine & Ethics, Inc.

Entities:  

Mesh:

Year:  2013        PMID: 23802898     DOI: 10.1111/jlme.12056

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  16 in total

1.  Opinion: Learning as we go: lessons from the publication of Facebook's social-computing research.

Authors:  Jeffrey P Kahn; Effy Vayena; Anna C Mastroianni
Journal:  Proc Natl Acad Sci U S A       Date:  2014-09-12       Impact factor: 11.205

Review 2.  Too much information: visual research ethics in the age of wearable cameras.

Authors:  Tze Ming Mok; Flora Cornish; Jen Tarr
Journal:  Integr Psychol Behav Sci       Date:  2015-06

3.  Social media methods for studying rare diseases.

Authors:  Kurt R Schumacher; Kathleen A Stringer; Janet E Donohue; Sunkyung Yu; Ashley Shaver; Regine L Caruthers; Brian J Zikmund-Fisher; Carlen Fifer; Caren Goldberg; Mark W Russell
Journal:  Pediatrics       Date:  2014-04-14       Impact factor: 7.124

Review 4.  Social media: opportunities for quality improvement and lessons for providers-a networked model for patient-centered care through digital engagement.

Authors:  Alexandra Bornkessel; Robert Furberg; R Craig Lefebvre
Journal:  Curr Cardiol Rep       Date:  2014-07       Impact factor: 2.931

5.  Structuring clinical workflows for diabetes care: an overview of the OntoHealth approach.

Authors:  M Schweitzer; N Lasierra; S Oberbichler; I Toma; A Fensel; A Hoerbst
Journal:  Appl Clin Inform       Date:  2014-05-28       Impact factor: 2.342

6.  Ethical issues in using Twitter for public health surveillance and research: developing a taxonomy of ethical concepts from the research literature.

Authors:  Mike Conway
Journal:  J Med Internet Res       Date:  2014-12-22       Impact factor: 5.428

7.  Revisiting respect for persons in genomic research.

Authors:  Debra J H Mathews; Leila Jamal
Journal:  Genes (Basel)       Date:  2014-01-22       Impact factor: 4.096

Review 8.  Subjects no more: what happens when trial participants realize they hold the power?

Authors:  Paul Wicks; Timothy Vaughan; James Heywood
Journal:  BMJ       Date:  2014-01-28

9.  Analysis of a parent-initiated social media campaign for Hirschsprung's disease.

Authors:  Kristy Wittmeier; Cindy Holland; Kendall Hobbs-Murison; Elizabeth Crawford; Chad Beauchamp; Brodie Milne; Melanie Morris; Richard Keijzer
Journal:  J Med Internet Res       Date:  2014-12-11       Impact factor: 5.428

10.  Video Q&A: Patients leading the direction of clinical research--an interview with Paul Wicks.

Authors:  Paul Wicks
Journal:  BMC Med       Date:  2014-07-18       Impact factor: 8.775

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