Literature DB >> 23745960

Relationships between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities.

Helen Bourke-Taylor1, Julie F Pallant, Mary Law, Linsey Howie.   

Abstract

AIM: Sleep problems are more common among children with disabilities. Mothers are likely to provide night-time care. Mothers of children with disabilities are known to experience high levels of stress and mental health issues compared with other mothers. Relationships between a child's sleep problems, and chronic maternal sleep interruption and subjective health have not been researched.
METHOD: Cross-sectional mail-out survey with follow-up phone call was used. Instruments included the Short Form 36 version 2 and instruments that measured maternal, child and sleep characteristics. Descriptive statistics examined characteristics of participants and correlation, and Kruskal-Wallis test was used to determine important maternal and child characteristics around sleep issues.
RESULTS: All mothers (n = 152) cared for a school-aged child with a developmental disability including autism spectrum disorder (n = 94) and cerebral palsy (n = 29). Nearly half (49%) of the mothers were awoken more than 4 nights/week. Three distinct sleep groups were identified: no sleep interruption; sleep interruption once/night, 4 nights/week; and more frequent interruption. Mothers experiencing the most sleep interruptions reported significantly poorer health on six Short Form 36 version 2 dimensions. Night-time caregiving was associated with higher child care needs rather than children's diagnoses. Mothers who experienced more sleep interruption also participated less in health-promoting activities (active leisure, time with socially supportive others) during the day.
CONCLUSION: This study identifies a group of mothers with chronic sleep interruption and demonstrates related poor maternal subjective health and lower participation in health activities that may service to support maternal health. Mothers with children with the highest daytime care needs also experienced high night-time care responsibilities. Changes to service provision are recommended to identify mothers in need of additional supports and services.
© 2013 The Authors. Journal of Paediatrics and Child Health © 2013 Paediatrics and Child Health Division (Royal Australasian College of Physicians).

Entities:  

Keywords:  caring; developmental; general paediatrics

Mesh:

Year:  2013        PMID: 23745960     DOI: 10.1111/jpc.12254

Source DB:  PubMed          Journal:  J Paediatr Child Health        ISSN: 1034-4810            Impact factor:   1.954


  8 in total

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2.  Mothers' Experiences of a Women's Health and Empowerment Program for Mothers of a Child with a Disability.

Authors:  Helen M Bourke-Taylor; Fiona M Jane
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3.  Attitudes, beliefs, and perceptions of caregivers and rehabilitation providers about disabled children's sleep health: a qualitative study.

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4.  Impacts of caring for a child with the CDKL5 disorder on parental wellbeing and family quality of life.

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5.  The Moderating Role of Parental Sleep Knowledge on Children with Developmental Disabilities and Their Parents' Sleep.

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6.  Alterations in Cortisol Profiles among Mothers of Children with ASD Related to Poor Child Sleep Quality.

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Journal:  Healthcare (Basel)       Date:  2022-04-01

7.  Sleep problems in children with cerebral palsy and their parents.

Authors:  Raquel Y Hulst; Jan Willem Gorter; Jeanine M Voorman; Eveline Kolk; Sanne Van Der Vossen; Johanna M A Visser-Meily; Marjolijn Ketelaar; Sigrid Pillen; Olaf Verschuren
Journal:  Dev Med Child Neurol       Date:  2021-05-15       Impact factor: 5.449

8.  Sibling sleep-What can it tell us about parental sleep reports in the context of autism?

Authors:  A J Schwichtenberg; Tara Hensle; Sarah Honaker; Meghan Miller; Sally Ozonoff; Thomas Anders
Journal:  Clin Pract Pediatr Psychol       Date:  2016-06
  8 in total

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