Literature DB >> 23739773

'DSM-V is taking away our identity': the reaction of the online community to the proposed changes in the diagnosis of Asperger's disorder.

David C Giles1.   

Abstract

This article considers the fate of Asperger's disorder in the light of proposals for the Diagnostic and Statistical Manual of Mental Disorders (5th ed.) to collapse Asperger's disorder along with other pervasive developmental disorders into a general spectrum of autism. It is argued that a powerful lay and scientific culture has evolved around the concept of Asperger's disorder, which has found a particularly compelling voice over the last decade in the online Asperger community, with websites such as Wrong Planet recruiting tens of thousands of members. In order to assess the impact of these proposed changes on the online Asperger community, 19 threads on the topic of Diagnostic and Statistical Manual of Mental Disorders (5th ed.) are analysed according to the arguments that community members put forward in favour of, or in opposition to, the proposals. Many members embrace the notion of the spectrum and have already coined a new identity - 'spectrumite' - to adapt to the diagnostic shift. Others, however, are suspicious of the motives behind the absorption of Asperger's disorder, and potential threats to the provision of services as well as the strong 'aspie' identity that reflects the large literature and the online public sphere around Asperger's disorder. To what extent this culture poses a challenge to the authority of the Diagnostic and Statistical Manual of Mental Disorders is uncertain at present.

Entities:  

Keywords:  discourse analysis; mental health; technology in health care

Mesh:

Year:  2013        PMID: 23739773     DOI: 10.1177/1363459313488006

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  5 in total

1.  Brief report: the impact of changing from DSM-IV 'Asperger's' to DSM-5 'autistic spectrum disorder' diagnostic labels on stigma and treatment attitudes.

Authors:  Jeneva L Ohan; Sarah E Ellefson; Patrick W Corrigan
Journal:  J Autism Dev Disord       Date:  2015-10

2.  'Coming Out' with Autism: Identity in People with an Asperger's Diagnosis After DSM-5.

Authors:  Olivia Smith; Sandra C Jones
Journal:  J Autism Dev Disord       Date:  2020-02

3.  Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts.

Authors:  Kristen Gillespie-Lynch; Steven K Kapp; Patricia J Brooks; Jonathan Pickens; Ben Schwartzman
Journal:  Front Psychol       Date:  2017-03-28

4.  The role of philosophy and ethics at the edges of medicine.

Authors:  Bjørn Hofmann
Journal:  Philos Ethics Humanit Med       Date:  2021-11-06       Impact factor: 2.464

Review 5.  The changing faces of autism: The fluctuating international diagnostic criteria and the resulting inclusion and exclusion-A Norwegian perspective.

Authors:  Sobh Chahboun; Frode Stenseng; Alexander G Page
Journal:  Front Psychiatry       Date:  2022-07-28       Impact factor: 5.435

  5 in total

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