Literature DB >> 23729429

Proposed EU data protection regulation is a threat to medical research.

M C Ploem, M L Essink-Bot, K Stronks.   

Abstract

Mesh:

Year:  2013        PMID: 23729429     DOI: 10.1136/bmj.f3534

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


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  9 in total

1.  Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach.

Authors:  Menno Mostert; Annelien L Bredenoord; Monique C I H Biesaart; Johannes J M van Delden
Journal:  Eur J Hum Genet       Date:  2015-11-11       Impact factor: 4.246

2.  You Can't Have AI Both Ways: Balancing Health Data Privacy and Access Fairly.

Authors:  Marieke Bak; Vince Istvan Madai; Marie-Christine Fritzsche; Michaela Th Mayrhofer; Stuart McLennan
Journal:  Front Genet       Date:  2022-06-13       Impact factor: 4.772

3.  The promotion of data sharing in pharmacoepidemiology.

Authors:  Nayha Sethi
Journal:  Eur J Health Law       Date:  2014-06

Review 4.  The importance of effective registries in pulmonary diseases and how to optimize their output.

Authors:  Joanna Chorostowska-Wynimko; Marion Wencker; Ildikó Horváth
Journal:  Chron Respir Dis       Date:  2019 Jan-Dec       Impact factor: 2.444

5.  Respect, justice and learning are limited when patients are deidentified data subjects.

Authors:  Marielle S Gross; Amelia J Hood; Joshua C Rubin; Robert C Miller
Journal:  Learn Health Syst       Date:  2022-03-04

6.  Will the trilogue on the EU Data Protection Regulation recognise the importance of health research?

Authors:  R Coppen; E B van Veen; P P Groenewegen; J M W Hazes; J D de Jong; J Kievit; J N D de Neeling; S A Reijneveld; R A Verheij; E Vroom
Journal:  Eur J Public Health       Date:  2015-08-10       Impact factor: 3.367

7.  A Randomised Controlled Trial of Consent Procedures for the Use of Residual Tissues for Medical Research: Preferences of and Implications for Patients, Research and Clinical Practice.

Authors:  S Rebers; E Vermeulen; A P Brandenburg; T J Stoof; B Zupan-Kajcovski; W J W Bos; M J Jonker; C J Bax; W J van Driel; V J Verwaal; M W van den Brekel; J C Grutters; R A Tupker; L Plusjé; R de Bree; J H Schagen van Leeuwen; E G J Vermeulen; R A de Leeuw; R M Brohet; N K Aaronson; F E Van Leeuwen; M K Schmidt
Journal:  PLoS One       Date:  2016-03-30       Impact factor: 3.240

Review 8.  Data research on child abuse and neglect without informed consent? Balancing interests under Dutch law.

Authors:  Eva M M Hoytema van Konijnenburg; Arianne H Teeuw; M Corrette Ploem
Journal:  Eur J Pediatr       Date:  2015-10-21       Impact factor: 3.183

9.  Addressing data privacy in matched studies via virtual pooling.

Authors:  P Saha-Chaudhuri; C R Weinberg
Journal:  BMC Med Res Methodol       Date:  2017-09-07       Impact factor: 4.615

  9 in total

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