Literature DB >> 23718852

Not the usual suspects: addressing layers of vulnerability.

Florencia Luna1, Sheryl Vanderpoel.   

Abstract

This paper challenges the traditional account of vulnerability in healthcare which conceptualizes vulnerability as a list of identifiable subpopulations. This list of 'usual suspects', focusing on groups from lower resource settings, is a narrow account of vulnerability. In this article we argue that in certain circumstances middle-class individuals can be also rendered vulnerable. We propose a relational and layered account of vulnerability and explore this concept using the case study of cord blood (CB) banking. In the first section, two different approaches to 'vulnerability' are contrasted: categorical versus layered. In the second section, we describe CB banking and present a case study of CB banking in Argentina. We examine the types of pressure that middle-class pregnant women feel when considering CB collection and storage. In section three, we use the CB banking case study to critique the categorical approach to vulnerability: this model is unable to account for the ways in which these women are vulnerable. A layered account of vulnerability identifies several ways in which middle-class women are vulnerable. Finally, by utilizing the layered approach, this paper suggests how public health policies could be designed to overcome vulnerabilities.
© 2013 John Wiley & Sons Ltd.

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Year:  2013        PMID: 23718852     DOI: 10.1111/bioe.12035

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  13 in total

Review 1.  The "Vulnerability" of Psychiatric Research Participants: Why This Research Ethics Concept Needs to Be Revisited.

Authors:  Dearbhail Bracken-Roche; Emily Bell; Eric Racine
Journal:  Can J Psychiatry       Date:  2016-04-05       Impact factor: 4.356

2.  A pragmatic analysis of vulnerability in clinical research.

Authors:  David Wendler
Journal:  Bioethics       Date:  2017-09       Impact factor: 1.898

3.  Communities of practice: acknowledging vulnerability to improve resilience in healthcare teams.

Authors:  Janet Delgado; Janet de Groot; Graham McCaffrey; Gina Dimitropoulos; Kathleen C Sitter; Wendy Austin
Journal:  J Med Ethics       Date:  2020-01-24       Impact factor: 2.903

4.  Body matters: rethinking the ethical acceptability of non-beneficial clinical research with children.

Authors:  Eva De Clercq; Domnita Oana Badarau; Katharina M Ruhe; Tenzin Wangmo
Journal:  Med Health Care Philos       Date:  2015-08

5.  Influence of gender norms in relation to child's quality of care: follow-up of families of children with SCD identified through NBS in Tanzania.

Authors:  Julie Makani; Michael Parker; Daima Bukini; Columba Mbekenga; Siana Nkya; Leonard Malasa; Sheryl McCurdy; Karim Manji
Journal:  J Community Genet       Date:  2020-08-12

Review 6.  Strengths and weaknesses of guideline approaches to safeguard voluntary informed consent of patients within a dependent relationship.

Authors:  Sara A S Dekking; Rieke van der Graaf; Johannes J M van Delden
Journal:  BMC Med       Date:  2014-03-24       Impact factor: 8.775

7.  A Qualitative Study into Dependent Relationships and Voluntary Informed Consent for Research in Pediatric Oncology.

Authors:  Sara A S Dekking; Rieke van der Graaf; Antoinette Y N Schouten-van Meeteren; Marijke C Kars; Johannes J M van Delden
Journal:  Paediatr Drugs       Date:  2016-04       Impact factor: 3.022

8.  The concept of 'vulnerability' in research ethics: an in-depth analysis of policies and guidelines.

Authors:  Dearbhail Bracken-Roche; Emily Bell; Mary Ellen Macdonald; Eric Racine
Journal:  Health Res Policy Syst       Date:  2017-02-07

9.  Model for developing context-sensitive responses to vulnerability in research: managing ethical dilemmas faced by frontline research staff in Kenya.

Authors:  Sassy Molyneux; Priya Sukhtankar; Johnstone Thitiri; Rita Njeru; Kui Muraya; Gladys Sanga; Judd L Walson; James Berkley; Maureen Kelley; Vicki Marsh
Journal:  BMJ Glob Health       Date:  2021-07

10.  Collaboration with community connectors to improve primary care access for hardly reached people: a case comparison of rural Ireland and Australia.

Authors:  Carolyn Wallace; Jane Farmer; Carolynne White; Anthony McCosker
Journal:  BMC Health Serv Res       Date:  2020-03-06       Impact factor: 2.655

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