Literature DB >> 23702888

'Like a prison without bars': dementia and experiences of dignity.

Anne Kari T Heggestad1, Per Nortvedt, Åshild Slettebø.   

Abstract

The aim of this article is to investigate how life in Norwegian nursing homes may affect experiences of dignity among persons with dementia. The study had a qualitative design and used a phenomenological and hermeneutic approach. Participant observation in two nursing home units was combined with qualitative interviews with five residents living in these units. The study took place between March and December 2010. The residents feel that their freedom is restricted, and they describe feelings of homesickness. They also experience that they are not being seen and heard as individual autonomous persons. This lack of freedom, experiences of homesickness and feelings of not being confirmed and respected as individual autonomous persons may be a threat to their personal dignity. In order to protect and enforce the dignity of persons with dementia living in nursing home, we should confirm them as whole and as individual persons, and we should try to make the nursing homes less institutional and more home like.

Entities:  

Keywords:  Belonging; confirmation; dementia; dignity; freedom; nursing home

Mesh:

Year:  2013        PMID: 23702888     DOI: 10.1177/0969733013484484

Source DB:  PubMed          Journal:  Nurs Ethics        ISSN: 0969-7330            Impact factor:   2.874


  14 in total

1.  Identifying Markers of Dignity-Conserving Care in Long-Term Care: A Modified Delphi Study.

Authors:  Genevieve N Thompson; Jennifer McArthur; Malcolm Doupe
Journal:  PLoS One       Date:  2016-06-15       Impact factor: 3.240

2.  Differences in quality of life in home-dwelling persons and nursing home residents with dementia - a cross-sectional study.

Authors:  Christine Olsen; Ingeborg Pedersen; Astrid Bergland; Marie-José Enders-Slegers; Nina Jøranson; Giovanna Calogiuri; Camilla Ihlebæk
Journal:  BMC Geriatr       Date:  2016-07-11       Impact factor: 3.921

3.  Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study.

Authors:  Marit Mjørud; Knut Engedal; Janne Røsvik; Marit Kirkevold
Journal:  BMC Health Serv Res       Date:  2017-01-31       Impact factor: 2.655

4.  The canary in the coal mine: Continence care for people with dementia in acute hospital wards as a crisis of dehumanization.

Authors:  Paula Boddington; Katie Featherstone
Journal:  Bioethics       Date:  2018-05       Impact factor: 1.898

5.  Psychometric properties of the geriatric quality of life-dementia in older adults with dementia or mild cognitive impairment living in nursing homes.

Authors:  Eun-Young Park; Seon-Min Park; Jung-Hee Kim
Journal:  BMC Geriatr       Date:  2019-10-22       Impact factor: 3.921

6.  The experience of lived space in persons with dementia: a systematic meta-synthesis.

Authors:  Linn Hege Førsund; Ellen Karine Grov; Anne-Sofie Helvik; Lene Kristine Juvet; Kirsti Skovdahl; Siren Eriksen
Journal:  BMC Geriatr       Date:  2018-02-01       Impact factor: 3.921

7.  Impact of the Sonas Programme on Communication over a Period of 24 Weeks in People with Moderate-to-Severe Dementia.

Authors:  Benedicte Sørensen Strøm; Jūratė Šaltytė Benth; Knut Engedal
Journal:  Dement Geriatr Cogn Dis Extra       Date:  2018-06-21

8.  Balancing the struggle to live with dementia: a systematic meta-synthesis of coping.

Authors:  Guro Hanevold Bjørkløf; Anne-Sofie Helvik; Tanja Louise Ibsen; Elisabeth Wiken Telenius; Ellen Karine Grov; Siren Eriksen
Journal:  BMC Geriatr       Date:  2019-10-30       Impact factor: 3.921

Review 9.  Dignifying and undignifying aspects of care for people with dementia: a narrative review.

Authors:  Wendy van der Geugten; Anne Goossensen
Journal:  Scand J Caring Sci       Date:  2019-11-21

10.  The meaning of dignity for older adults: A meta-synthesis.

Authors:  Anne Clancy; Nina Simonsen; Johanne Lind; Anne Liveng; Aud Johannessen
Journal:  Nurs Ethics       Date:  2020-07-02       Impact factor: 2.874

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