Literature DB >> 23682672

Family demands, social support and family functioning in Taiwanese families rearing children with Down syndrome.

C-Y Hsiao1.   

Abstract

BACKGROUND: Down syndrome (DS) affects not only children but also their families. Much remains to be learned about factors that influence how families of children with DS function, especially families in non-Western populations. The purpose of this cross-sectional, correlational study was to examine how family demographics, family demands and social support relate to family functioning as well as the potential mediating effect of social support on the relationship between family demands and family functioning in Taiwanese families of children with DS.
METHOD: One hundred and fifty-five parents (80 mothers and 75 fathers) from 83 families independently completed mailed questionnaires. Data were analysed using a principal component analysis and mixed linear modelling.
RESULTS: Families having older children with DS, greater parental education, higher family income, fewer family demands and greater social support contributed to healthier family functioning. Social support partially mediated the effects of family demands on family functioning.
CONCLUSIONS: Family demographics, family demands and social support appear to be important factors that may play a critical role in how Taiwanese families respond to the birth of a child with DS. Care of children with DS and their families is likely to be more effective if professionals working with these families are aware of factors that contribute to healthy family functioning.
© 2013 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

Entities:  

Keywords:  Down syndrome; demands; family functioning; social support

Mesh:

Year:  2013        PMID: 23682672     DOI: 10.1111/jir.12052

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  6 in total

1.  Caregivers' perceptions and experience of caring for persons with Down syndrome in Kuwait: a qualitative study.

Authors:  Amna AlShatti; Dana AlKandari; Hessa AlMutairi; Dalal AlEbrahim; Abdullah AlMutairi; Danah AlAnsari; Lulwa Abduljaleel; Hassna AlEnzi; Latifa AlFoudari; Hamad AlShaib; Khalid AlAzmi; Jamil Ahmed
Journal:  Int J Dev Disabil       Date:  2021-04-13

Review 2.  Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities: A systematic review.

Authors:  N Luitwieler; J Luijkx; M Salavati; C P Van der Schans; A J Van der Putten; A Waninge
Journal:  Heliyon       Date:  2021-06-24

3.  Co-morbidities leading to mortality or hospitalization in children with Down syndrome and its effect on the quality of life of their parents.

Authors:  Seema Kapoor; Swati Bhayana; Ankur Singh; Jugal Kishore
Journal:  Indian J Pediatr       Date:  2014-05-14       Impact factor: 1.967

4.  Quality of Life Among Caregivers of Children with Special Needs in Kelantan, Malaysia: The Importance of Psychosocial Mediators.

Authors:  Siti Nor Ismalina Isa; Ismarulyusda Ishak; Azriani Ab Rahman; Nur Zakiah Mohd Saat; Normah Che Din; Syarif Husin Lubis; Muhammad Faiz Mohd Ismail; Nur Riza Mohd Suradi
Journal:  Malays J Med Sci       Date:  2021-04-21

5.  Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.

Authors:  Marcia Van Riper; George J Knafl; Maria do Céu Barbieri-Figueiredo; Maria Caples; Hyunkyung Choi; Gert de Graaf; Elysângela Dittz Duarte; Junko Honda; Elena Marta; Supapak Phetrasuwan; Sara Alfieri; Margareth Angelo; Wannee Deoisres; Louise Fleming; Aline Soares Dos Santos; Maria João Rocha da Silva; Beth Skelton; Shelley van der Veek; Kathleen A Knafl
Journal:  J Fam Nurs       Date:  2020-12-04       Impact factor: 3.818

Review 6.  Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families.

Authors:  Beth Skelton; Kathleen Knafl; Marcia Van Riper; Louise Fleming; Veronica Swallow
Journal:  Children (Basel)       Date:  2021-06-29
  6 in total

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