Literature DB >> 23671377

Opportunities and challenges in linking information across databases in pediatric cardiovascular medicine.

Sara K Pasqual1, Jennifer S Li, Marshall L Jacobs, Samir S Shah, Jeffrey P Jacobs.   

Abstract

Multicenter databases are increasingly utilized in pediatric cardiovascular research. In this review, we discuss the rational for using these types of data sources, provide several examples of how large datasets have been utilized in clinical research, and describe different mechanisms for linking databases to enable studies not possible with individual datasets alone.

Entities:  

Keywords:  congenital heart disease; outcomes research

Year:  2012        PMID： 23671377      PMCID： PMC3651671          DOI： 10.1016/j.ppedcard.2011.12.004

Source DB:  PubMed          Journal:  Prog Pediatr Cardiol        ISSN： 1058-9813


  42 in total

1.  Regulatory and ethical considerations for linking clinical and administrative databases.

Authors:  Rachel S Dokholyan; Lawrence H Muhlbaier; John M Falletta; Jeffrey P Jacobs; David Shahian; Constance K Haan; Eric D Peterson
Journal:  Am Heart J       Date:  2009-06       Impact factor: 4.749

2.  Effectiveness of screening for life-threatening chest pain in children.

Authors:  Susan F Saleeb; Wing Yi V Li; Shira Z Warren; James E Lock
Journal:  Pediatrics       Date:  2011-10-10       Impact factor: 7.124

3.  Outcomes in adult congenital heart surgery: analysis of the Society of Thoracic Surgeons database.

Authors:  Christopher E Mascio; Sara K Pasquali; Jeffrey P Jacobs; Marshall L Jacobs; Erle H Austin
Journal:  J Thorac Cardiovasc Surg       Date:  2011-09-10       Impact factor: 5.209

4.  The Fontan patient: inconsistencies in medication therapy across seven pediatric heart network centers.

Authors:  Page A W Anderson; Roger E Breitbart; Brian W McCrindle; Lynn A Sleeper; Andrew M Atz; Daphne T Hsu; Minmin Lu; Renee Margossian; Richard V Williams
Journal:  Pediatr Cardiol       Date:  2010-10-12       Impact factor: 1.655

5.  Celiac artery flow pattern in infants with single right ventricle following the Norwood procedure with a modified Blalock-Taussig or right ventricle to pulmonary artery shunt.

Authors:  Jason N Johnson; Annette K Ansong; Jennifer S Li; Mingfen Xu; Jessica Gorentz; David A Hehir; Sylvia L del Castillo; Wyman W Lai; Karen Uzark; Sara K Pasquali
Journal:  Pediatr Cardiol       Date:  2011-02-18       Impact factor: 1.655

6.  Impact of noncardiac congenital and genetic abnormalities on outcomes in hypoplastic left heart syndrome.

Authors:  Angira Patel; Edward Hickey; Constantine Mavroudis; Jeffrey P Jacobs; Marshall L Jacobs; Carl L Backer; Melanie Gevitz; Constantine D Mavroudis
Journal:  Ann Thorac Surg       Date:  2010-06       Impact factor: 4.330

7.  National practice patterns for management of adult congenital heart disease: operation by pediatric heart surgeons decreases in-hospital death.

Authors:  Tara Karamlou; Brian S Diggs; Thomas Person; Ross M Ungerleider; Karl F Welke
Journal:  Circulation       Date:  2008-11-07       Impact factor: 29.690

8.  Completeness of state administrative databases for surveillance of congenital heart disease.

Authors:  Christine E Cronk; Marsha E Malloy; Andrew N Pelech; Richard E Miller; Sally A Meyer; Melissa Cowell; D Gail McCarver
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2003-09

Review 9.  Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease--the perspective of critical care.

Authors:  Joan M LaRovere; Howard E Jeffries; Ramesh C Sachdeva; Thomas B Rice; Randall C Wetzel; David S Cooper; Geoffrey L Bird; Nancy S Ghanayem; Paul A Checchia; Anthony C Chang; David L Wessel
Journal:  Cardiol Young       Date:  2008-12       Impact factor: 1.093

10.  Off-label use of cardiovascular medications in children hospitalized with congenital and acquired heart disease.

Authors:  Sara K Pasquali; Matthew Hall; Anthony D Slonim; Kathy J Jenkins; Bradley S Marino; Meryl S Cohen; Samir S Shah
Journal:  Circ Cardiovasc Qual Outcomes       Date:  2008-11-05
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  1 in total

1.  Linking the congenital heart surgery databases of the Society of Thoracic Surgeons and the Congenital Heart Surgeons' Society: part 1--rationale and methodology.

Authors:  Jeffrey P Jacobs; Sara K Pasquali; Erle Austin; J William Gaynor; Carl Backer; Jennifer C Hirsch-Romano; William G Williams; Christopher A Caldarone; Brian W McCrindle; Karen E Graham; Rachel S Dokholyan; Gregory J Shook; Jennifer Poteat; Maulik V Baxi; Tara Karamlou; Eugene H Blackstone; Constantine Mavroudis; John E Mayer; Richard A Jonas; Marshall L Jacobs
Journal:  World J Pediatr Congenit Heart Surg       Date:  2014-04
  1 in total

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