Literature DB >> 23667745

Patient-reported outcomes in gastroenterology: clinical and research applications.

Brennan M R Spiegel1.   

Abstract

Patient-generated reports, also known as Patient-Reported Outcomes (PROs), capture the patients' illness experience in a structured format and may help bridge the gap between patients and providers. PROs measure any aspect of patient-reported health (e.g., physical, emotional or social symptoms) and can help to direct care and improve clinical outcomes. When clinicians systematically collect patient-reported data in the right place at the right time, PRO measurement can effectively aid in detection and management of conditions, improve satisfaction with care and enhance the patient-provider relationship. This review article summarizes the latest approaches to PRO measuring for clinical trials and clinical practice, with a focus on use of PROs in gastroenterology.

Entities:  

Keywords:  Gastroenterology; Patient-reported outcomes; Quality of life

Year:  2013        PMID: 23667745      PMCID: PMC3644650          DOI: 10.5056/jnm.2013.19.2.137

Source DB:  PubMed          Journal:  J Neurogastroenterol Motil        ISSN: 2093-0879            Impact factor:   4.924


  138 in total

1.  The IBS-36: a new quality of life measure for irritable bowel syndrome.

Authors:  Dianne Groll; Stephen J Vanner; William T Depew; Laurington R DaCosta; Jerome B Simon; Aubrey Groll; Nancy Roblin; William G Paterson
Journal:  Am J Gastroenterol       Date:  2002-04       Impact factor: 10.864

Review 2.  Impact of patient-reported outcome measures on routine practice: a structured review.

Authors:  Susan Marshall; Kirstie Haywood; Ray Fitzpatrick
Journal:  J Eval Clin Pract       Date:  2006-10       Impact factor: 2.431

3.  Reliability and validity of a new scale to assess postoperative dysfunction after resection of upper gastrointestinal carcinoma.

Authors:  Misuzu Nakamura; Yoshihiro Kido; Masahiko Yano; Yoshinori Hosoya
Journal:  Surg Today       Date:  2005       Impact factor: 2.549

4.  Psychometric validation of a constipation symptom assessment questionnaire.

Authors:  L Frank; L Kleinman; C Farup; L Taylor; P Miner
Journal:  Scand J Gastroenterol       Date:  1999-09       Impact factor: 2.423

5.  A new condition-specific health-related quality of life questionnaire for the assessment of women with anal incontinence.

Authors:  G J Bug; E S Kiff; G Hosker
Journal:  BJOG       Date:  2001-10       Impact factor: 6.531

6.  The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress.

Authors:  R K Portenoy; H T Thaler; A B Kornblith; J M Lepore; H Friedlander-Klar; E Kiyasu; K Sobel; N Coyle; N Kemeny; L Norton
Journal:  Eur J Cancer       Date:  1994       Impact factor: 9.162

Review 7.  Measuring health-related quality of life.

Authors:  G H Guyatt; D H Feeny; D L Patrick
Journal:  Ann Intern Med       Date:  1993-04-15       Impact factor: 25.391

8.  Multidimensional measure for gastroesophageal reflux disease (MM-GERD) symptoms in children: a population-based study.

Authors:  Hoda M Malaty; Kimberly J O'Malley; Suhaib Abudayyeh; David Y Graham; Mark A Gilger
Journal:  Acta Paediatr       Date:  2008-05-28       Impact factor: 2.299

9.  Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial.

Authors:  Galina Velikova; Laura Booth; Adam B Smith; Paul M Brown; Pamela Lynch; Julia M Brown; Peter J Selby
Journal:  J Clin Oncol       Date:  2004-02-15       Impact factor: 44.544

10.  The Canadian celiac health survey--the Ottawa chapter pilot.

Authors:  Ann Cranney; Marion Zarkadas; Ian D Graham; Connie Switzer
Journal:  BMC Gastroenterol       Date:  2003-05-11       Impact factor: 3.067

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  25 in total

1.  Prevalence of and Factors Associated With Fecal Incontinence: Results From a Population-Based Survey.

Authors:  Stacy B Menees; Christopher V Almario; Brennan M R Spiegel; William D Chey
Journal:  Gastroenterology       Date:  2018-02-03       Impact factor: 22.682

2.  Management of gastrointestinal involvement in scleroderma.

Authors:  Vivek Nagaraja; Zsuzsanna H McMahan; Terri Getzug; Dinesh Khanna
Journal:  Curr Treatm Opt Rheumatol       Date:  2015-03-01

3.  Impact of National Institutes of Health Gastrointestinal PROMIS Measures in Clinical Practice: Results of a Multicenter Controlled Trial.

Authors:  Christopher V Almario; William D Chey; Dinesh Khanna; Sasan Mosadeghi; Shahzad Ahmed; Elham Afghani; Cynthia Whitman; Garth Fuller; Mark Reid; Roger Bolus; Buddy Dennis; Rey Encarnacion; Bibiana Martinez; Jennifer Soares; Rushaba Modi; Nikhil Agarwal; Aaron Lee; Scott Kubomoto; Gobind Sharma; Sally Bolus; Brennan M R Spiegel
Journal:  Am J Gastroenterol       Date:  2016-08-02       Impact factor: 10.864

4.  The impact of physical complaints, social environment, and psychological functioning on IBS patients' health perceptions: looking beyond GI symptom severity.

Authors:  Jeffrey M Lackner; Gregory D Gudleski; Elyse R Thakur; Travis J Stewart; Gary J Iacobucci; Brennan Mr Spiegel
Journal:  Am J Gastroenterol       Date:  2014-01-14       Impact factor: 10.864

5.  Gastrointestinal symptom severity in irritable bowel syndrome, inflammatory bowel disease and the general population.

Authors:  A D Lee; B M Spiegel; R D Hays; G Y Melmed; R Bolus; D Khanna; P P Khanna; L Chang
Journal:  Neurogastroenterol Motil       Date:  2016-12-16       Impact factor: 3.598

6.  Burden of Gastrointestinal Symptoms in the United States: Results of a Nationally Representative Survey of Over 71,000 Americans.

Authors:  Christopher V Almario; Megana L Ballal; William D Chey; Carl Nordstrom; Dinesh Khanna; Brennan M R Spiegel
Journal:  Am J Gastroenterol       Date:  2018-10-15       Impact factor: 10.864

Review 7.  PRISM, a Patient-Reported Outcome Instrument, Accurately Measures Symptom Change in Refractory Gastroesophageal Reflux Disease.

Authors:  Garth Fuller; Roger Bolus; Cynthia Whitman; Jennifer Talley; M Haim Erder; Alain Joseph; Debra G Silberg; Brennan Spiegel
Journal:  Dig Dis Sci       Date:  2017-01-23       Impact factor: 3.199

8.  GERD symptoms in the general population: prevalence and severity versus care-seeking patients.

Authors:  Erica Cohen; Roger Bolus; Dinesh Khanna; Ron D Hays; Lin Chang; Gil Y Melmed; Puja Khanna; Brennan Spiegel
Journal:  Dig Dis Sci       Date:  2014-05-09       Impact factor: 3.199

9.  How is your proctology patient really doing? Outcome measurement in proctology: development, design and validation study of the Proctoprom.

Authors:  G J Vander Mijnsbrugge; C Molenaar; R Buyl; G Westert; P J van der Wees
Journal:  Tech Coloproctol       Date:  2020-02-28       Impact factor: 3.781

10.  Development of the NIH Patient-Reported Outcomes Measurement Information System (PROMIS) gastrointestinal symptom scales.

Authors:  Brennan M R Spiegel; Ron D Hays; Roger Bolus; Gil Y Melmed; Lin Chang; Cynthia Whitman; Puja P Khanna; Sylvia H Paz; Tonya Hays; Steve Reise; Dinesh Khanna
Journal:  Am J Gastroenterol       Date:  2014-09-09       Impact factor: 10.864

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