Literature DB >> 23601042

One facility's experience in reframing nonfeeding into a comprehensive palliative care model.

Claire Vesely1, Barbara Beach.   

Abstract

In Western culture, feeding is viewed as symbolic of life, and nonfeeding at the end of life is often considered unacceptable. This sentiment is magnified for infants. Reframing nonfeeding into comprehensive care can be achieved by anticipatory guidance, which can make the experience of infant death meaningful for parents. Since 2004, the George Mark Children's House, an inpatient pediatric palliative care center, has offered this model of care and supported families with challenging clinical experiences. A case study is provided.
© 2013 AWHONN, the Association of Women's Health, Obstetric and Neonatal Nurses.

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Year:  2013        PMID: 23601042     DOI: 10.1111/1552-6909.12027

Source DB:  PubMed          Journal:  J Obstet Gynecol Neonatal Nurs        ISSN: 0090-0311


  2 in total

1.  Withdrawal of artificial nutrition and hydration: a survey of level IV neonatal intensive care units.

Authors:  Robin Saoud; Devika Locke; Jessica T Fry; Nana Matoba; Ankur Datta; Robert DiGeronimo; Steven R Leuthner; Carl H Coghill; Girija Natarajan; Jason Z Niehaus; Amy Brown Schlegel; Julie Weiner; Narendra Dereddy; Anita Shah; Kevin M Sullivan
Journal:  J Perinatol       Date:  2021-03-23       Impact factor: 2.521

2.  The outcome of treatment limitation discussions in newborns with brain injury.

Authors:  Marcus Brecht; Dominic J C Wilkinson
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2014-12-04       Impact factor: 5.747

  2 in total

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