Literature DB >> 23587574

The natural history of autosomal dominant polycystic kidney disease: 30-year experience from a single centre.

K M Thong1, A C M Ong.   

Abstract

BACKGROUND AND AIM: Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney disease. The major objective of this study was to analyse the natural history of disease progression in all patients with ADPKD seen at the Sheffield Kidney Institute between 1978 and 2012.
METHODS: A retrospective analysis was performed based on recorded renal function up to 30 years prior to analysis. The rate of estimated glomerular filtration rate (eGFR) decline (ΔeGFR) was determined by linear regression, based on a minimum of 5 years of renal function prior to the study or renal replacement therapy. Patients who had reached end-stage renal disease (ESRD) (n = 113) were compared with those under follow-up in a dedicated polycystic kidney disease (PKD) clinic (n = 88).
RESULTS: The two groups were comparable in age and gender though the mean follow-up duration was longer in the PKD clinic group. Overall, ΔeGFR was significantly higher in the ESRD group compared with the PKD clinic group (4.19 ± 1.66 vs. 1.71 ± 1.36 ml/min/1.73 m(2)/year). Retrospective analysis for each 5-year period prior to ESRD or analysis showed a significant difference in ΔeGFR between both groups 10 years before with an increasing trend in ΔeGFR 20 years before especially in the ESRD group. In the PKD clinic group, the age of diagnosis and mean kidney length were also predictors of ΔeGFR.
CONCLUSION: This is one of the longest natural history studies in ADPKD. The difference in ΔeGFR can be predicted at least 10 years prior to the onset of ESRD and thus will enable higher risk patients to be identified early for treatment.

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Year:  2013        PMID: 23587574     DOI: 10.1093/qjmed/hct082

Source DB:  PubMed          Journal:  QJM        ISSN: 1460-2393


  20 in total

1.  Long-term trajectory of kidney function in autosomal-dominant polycystic kidney disease.

Authors:  Alan S L Yu; Chengli Shen; Douglas P Landsittel; Jared J Grantham; Larry T Cook; Vicente E Torres; Arlene B Chapman; Kyongtae Ty Bae; Michal Mrug; Peter C Harris; Frederic F Rahbari-Oskoui; Tiange Shi; William M Bennett
Journal:  Kidney Int       Date:  2019-03-04       Impact factor: 10.612

2.  Baseline total kidney volume and the rate of kidney growth are associated with chronic kidney disease progression in Autosomal Dominant Polycystic Kidney Disease.

Authors:  Alan S L Yu; Chengli Shen; Douglas P Landsittel; Peter C Harris; Vicente E Torres; Michal Mrug; Kyongtae T Bae; Jared J Grantham; Frederic F Rahbari-Oskoui; Michael F Flessner; William M Bennett; Arlene B Chapman
Journal:  Kidney Int       Date:  2017-12-28       Impact factor: 10.612

3.  Identification of PKD1 and PKD2 gene variants in a cohort of 125 Asian Indian patients of ADPKD.

Authors:  Shewata Pandita; Vijaya Ramachandran; Prahlad Balakrishnan; Arndt Rolfs; Oliver Brandau; Sabrina Eichler; Anil Kumar Bhalla; Dinesh Khullar; Vindu Amitabh; Sivaramakrishnan Ramanarayanan; Vijay Kher; Jyotsna Verma; Sudha Kohli; Renu Saxena; Ishwar Chander Verma
Journal:  J Hum Genet       Date:  2019-02-28       Impact factor: 3.172

4.  Design and Basic Characteristics of a National Patient-Powered Registry in ADPKD.

Authors:  Elise Hoover; Ronald D Perrone; Chris Rusconi; Beverly Benson; Neera K Dahl; Berenice Gitomer; Amy Manelli; Michal Mrug; Meyeon Park; Stephen L Seliger; Milind A Phadnis; Nadeesha Thewarapperuma; Terry J Watnick
Journal:  Kidney360       Date:  2022-05-20

Review 5.  Current management of autosomal dominant polycystic kidney disease.

Authors:  Jacob A Akoh
Journal:  World J Nephrol       Date:  2015-09-06

6.  Potential Therapeutic Effects of Long-Term Stem Cell Administration: Impact on the Gene Profile and Kidney Function of PKD/Mhm (Cy/+) Rats.

Authors:  Daniela Nardozi; Stefania Palumbo; Arif Ul Maula Khan; Carsten Sticht; Karen Bieback; Samar Sadeghi; Mark Andreas Kluth; Michael Keese; Norbert Gretz
Journal:  J Clin Med       Date:  2022-05-05       Impact factor: 4.241

7.  Progression of autosomal dominant kidney disease: measurement of the stage transitions of chronic kidney disease.

Authors:  Christopher M Blanchette; Caihua Liang; Deborah P Lubeck; Britt Newsome; Sandro Rossetti; Xiangmei Gu; Benjamin Gutierrez; Nancy D Lin
Journal:  Drugs Context       Date:  2015-04-17

Review 8.  A systematic review of the predictors of disease progression in patients with autosomal dominant polycystic kidney disease.

Authors:  Claire Woon; Ashleigh Bielinski-Bradbury; Karl O'Reilly; Paul Robinson
Journal:  BMC Nephrol       Date:  2015-08-15       Impact factor: 2.388

9.  Clinical characteristics and disease predictors of a large Chinese cohort of patients with autosomal dominant polycystic kidney disease.

Authors:  Dongping Chen; Yiyi Ma; Xueqi Wang; Shengqiang Yu; Lin Li; Bing Dai; Zhiguo Mao; Lijun Sun; Chenggang Xu; Shu Rong; Mengjun Tang; Hongbo Zhao; Hongchao Liu; Andreas L Serra; Nicole Graf; Shiyuan Liu; Rudolf P Wüthrich; Changlin Mei
Journal:  PLoS One       Date:  2014-03-20       Impact factor: 3.240

10.  Understanding the physical and emotional impact of early-stage ADPKD: experiences and perspectives of patients and physicians.

Authors:  Anna Baker; Dominic King; James Marsh; Andrew Makin; Alison Carr; Catherine Davis; Cara Kirby
Journal:  Clin Kidney J       Date:  2015-07-28
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