Literature DB >> 23542083

Disclosure of confidential patient information and the duty to consult: the role of the health and social care information centre.

Jamie Grace1, Mark J Taylor.   

Abstract

Before disclosing confidential patient information for purposes not directly related to his or her care and treatment, there is currently a responsibility upon health professionals to consult with a patient wherever practicable. The Health and Social Care Act 2012 has diluted that responsibility to consult, at least in relation to any information that the Health and Social Care Information Centre requires health professionals to disclose. This is at odds with other moves to support an individual's involvement in decisions that affect them. Moreover, a responsibility to consult can be shown to be a procedural aspect of the fundamental right to respect for private and family life as guaranteed by Article 8 of the European Convention on Human Rights (ECHR). The scope and nature of a procedural requirement for consultation can be revealed, at least in part, by considering the case law concerning disclosure in the field of criminality information sharing. If the Health and Social Care Act 2012 is to be adequately protected from a challenge for incompatibility with the ECHR, then practicable opportunities to provide information about the intended purposes of processing, and respect for any reasonable objection to disclosure, must be recognised beyond those explicitly provided for by the 2012 Act. The Code of Practice that the Information Centre is responsible for producing represents an opportunity to guarantee adequate levels of consultation will be preserved, consistent with proposed changes to the NHS Constitution.

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Year:  2013        PMID: 23542083     DOI: 10.1093/medlaw/fwt013

Source DB:  PubMed          Journal:  Med Law Rev        ISSN: 0967-0742            Impact factor:   1.267


  4 in total

1.  Health research access to personal confidential data in England and Wales: assessing any gap in public attitude between preferable and acceptable models of consent.

Authors:  Mark J Taylor; Natasha Taylor
Journal:  Life Sci Soc Policy       Date:  2014-07-30

2.  "You hoped we would sleep walk into accepting the collection of our data": controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.

Authors:  Sigrid Sterckx; Vojin Rakic; Julian Cockbain; Pascal Borry
Journal:  Med Health Care Philos       Date:  2016-06

3.  Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.

Authors:  J Patrick Woolley; Michelle L McGowan; Harriet J A Teare; Victoria Coathup; Jennifer R Fishman; Richard A Settersten; Sigrid Sterckx; Jane Kaye; Eric T Juengst
Journal:  BMC Med Ethics       Date:  2016-06-04       Impact factor: 2.652

4.  Health Data Linkage for UK Public Interest Research: Key Obstacles and Solutions.

Authors:  Miranda Jane Mourby; James Doidge; Kerina H Jones; Stergios Aidinlis; Hannah Smith; Jessica Bell; Ruth Gilbert; Peter Dutey-Magni; Jane Kaye
Journal:  Int J Popul Data Sci       Date:  2019-04-02
  4 in total

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