Literature DB >> 23531390

Engaging communities in tuberculosis research.

Renaud F Boulanger1, Stephanie Seidel, Erica Lessem, Lee Pyne-Mercier, Sharon D Williams, Laia Ruiz Mingote, Cherise Scott, Alicia Y Chou, James V Lavery.   

Abstract

According to a growing consensus among biomedical researchers, community engagement can improve the ethics and outcomes of clinical trials. Although successful efforts to develop community engagement practices in HIV/AIDS research have been reported, little attention has been given to engagement with the community in tuberculosis research. This article aims to draw attention to some existing community engagement initiatives in tuberculosis research and to resources that might help tuberculosis researchers to establish and implement community engagement programmes for their trials. One of these resources-the good participatory practice guidelines for tuberculosis drug trials-offers a conceptual framework and practical guidance for community engagement in tuberculosis research. To build momentum and to improve community engagement, lessons need to be shared, and formal assessment strategies for community engagement initiatives need to be developed. To build successfully on the promising activities described in this personal view, research funders and sponsors should show leadership in allocation of resources for the implementation and assessment of community engagement programmes in tuberculosis trials.
Copyright © 2013 Elsevier Ltd. All rights reserved.

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Year:  2013        PMID: 23531390     DOI: 10.1016/S1473-3099(13)70042-2

Source DB:  PubMed          Journal:  Lancet Infect Dis        ISSN: 1473-3099            Impact factor:   25.071


  13 in total

1.  Optimizing the protection of research participants and personnel in HIV-related research where TB is prevalent: practical solutions for improving infection control.

Authors:  Jason E Farley; Timothy F Landers; Catherine Godfrey; Virginia Lipke; Jeremy Sugarman
Journal:  J Acquir Immune Defic Syndr       Date:  2014-01-01       Impact factor: 3.731

2.  Developing a Framework for Evaluating Ethical Outcomes of Good Participatory Practices in TB Clinical Drug Trials.

Authors:  Kathleen M MacQueen; Natalie T Eley; Mike Frick; Laia Ruiz Mingote; Alicia Chou; Stephanie S Seidel; Stacey Hannah; Carol Hamilton
Journal:  J Empir Res Hum Res Ethics       Date:  2016-06-30       Impact factor: 1.742

3.  "Carrying Ibuprofen in the Bag": Priority Health Concerns of Latin American Migrants in Spain- A Participatory Qualitative Study.

Authors:  Maria Roura; Federico Bisoffi; Barbara Navaza; Robert Pool
Journal:  PLoS One       Date:  2015-08-28       Impact factor: 3.240

4.  Evaluating community engagement in global health research: the need for metrics.

Authors:  Kathleen M MacQueen; Anant Bhan; Janet Frohlich; Jessica Holzer; Jeremy Sugarman
Journal:  BMC Med Ethics       Date:  2015-07-01       Impact factor: 2.652

5.  Perceptions of Research Bronchoscopy in Malawian Adults with Pulmonary Tuberculosis: A Cross-Sectional Study.

Authors:  Andrew D McCallum; Deborah Nyirenda; Wezzie Lora; Saye H Khoo; Derek J Sloan; Henry C Mwandumba; Nicola Desmond; Geraint R Davies
Journal:  PLoS One       Date:  2016-10-28       Impact factor: 3.240

6.  Experiences of community members and researchers on community engagement in an Ecohealth project in South Africa and Zimbabwe.

Authors:  Rosemary Musesengwa; Moses J Chimbari
Journal:  BMC Med Ethics       Date:  2017-12-13       Impact factor: 2.652

7.  Initiating community engagement in an ecohealth research project in Southern Africa.

Authors:  Rosemary Musesengwa; Moses J Chimbari; Samson Mukaratirwa
Journal:  Infect Dis Poverty       Date:  2017-03-07       Impact factor: 4.520

8.  Improving ethical and participatory practice for marginalized populations in biomedical HIV prevention trials: lessons from Thailand.

Authors:  Dan Allman; Melissa Hope Ditmore; Karyn Kaplan
Journal:  PLoS One       Date:  2014-06-20       Impact factor: 3.240

9.  Taima (stop) TB: the impact of a multifaceted TB awareness and door-to-door campaign in residential areas of high risk for TB in Iqaluit, Nunavut.

Authors:  Gonzalo G Alvarez; Deborah D VanDyk; Shawn D Aaron; D William Cameron; Naomi Davies; Natasha Stephen; Ranjeeta Mallick; Franco Momoli; Katherine Moreau; Natan Obed; Maureen Baikie; Geraldine Osborne
Journal:  PLoS One       Date:  2014-07-17       Impact factor: 3.240

10.  Falling Short of the Rights to Health and Scientific Progress: Inadequate TB Drug Research and Access.

Authors:  Mike Frick; Ian Henry; Erica Lessem
Journal:  Health Hum Rights       Date:  2016-06
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