Literature DB >> 23514395

Informed consent, big data, and the oxymoron of research that is not research.

John P A Ioannidis1.   

Abstract

Mesh：

Year:  2013        PMID： 23514395     DOI： 10.1080/15265161.2013.768864

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  21 in total

1.  Routinely collected data and comparative effectiveness evidence: promises and limitations.

Authors:  Lars G Hemkens; Despina G Contopoulos-Ioannidis; John P A Ioannidis
Journal:  CMAJ       Date:  2016-02-16       Impact factor: 8.262

2.  Data sharing: Don't compromise on informed consent.

Authors:  Helen Wallace
Journal:  Nature       Date:  2013-09-12       Impact factor: 49.962

Review 3.  The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.

Authors:  Brent Daniel Mittelstadt; Luciano Floridi
Journal:  Sci Eng Ethics       Date:  2015-05-23       Impact factor: 3.525

4.  Ethics and Epistemology in Big Data Research.

Authors:  Wendy Lipworth; Paul H Mason; Ian Kerridge; John P A Ioannidis
Journal:  J Bioeth Inq       Date:  2017-03-20       Impact factor: 1.352

Review 5.  A Narrative Review and Proposed Framework for Using Health System Data with Systematic Reviews to Support Decision-making.

Authors:  Jennifer S Lin; M Hassan Murad; Brian Leas; Jonathan R Treadwell; Roger Chou; Ilya Ivlev; Devan Kansagara
Journal:  J Gen Intern Med       Date:  2020-04-01       Impact factor: 5.128

6.  Participant views on consent in cancer genetics research: preparing for the precision medicine era.

Authors:  Karen L Edwards; Diane M Korngiebel; Lesley Pfeifer; Deborah Goodman; Anne Renz; Lari Wenzel; Deborah J Bowen; Celeste M Condit
Journal:  J Community Genet       Date:  2016-01-22

Review 7.  Big Data in Public Health: Terminology, Machine Learning, and Privacy.

Authors:  Stephen J Mooney; Vikas Pejaver
Journal:  Annu Rev Public Health       Date:  2017-12-20       Impact factor: 21.981

8.  Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India.

Authors:  Ketaki Hate; Sanna Meherally; Neena Shah More; Anuja Jayaraman; Susan Bull; Michael Parker; David Osrin
Journal:  J Empir Res Hum Res Ethics       Date:  2015-07       Impact factor: 1.742

9.  How electronic clinical data can improve health technology assessment.

Authors:  Jonathan R Treadwell; Eileen Erinoff; Vivian Coates
Journal:  EGEMS (Wash DC)       Date:  2013-10-28

Review 10.  Lost in Translation (LiT): IUPHAR Review 6.

Authors:  Colin T Dollery
Journal:  Br J Pharmacol       Date:  2014-05       Impact factor: 8.739
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