Literature DB >> 23507695

Epidermolysis bullosa and chronic wounds: a model for wound bed preparation of fragile skin.

Elena Pope1, Irene Lara-Corrales, Jemima E Mellerio, Anna E Martinez, Cathryn Sibbald, R Gary Sibbald.   

Abstract

Epidermolysis bullosa (EB) is a group of inherited diseases with 4 subtypes. This disorder is a model for fragile skin, with some affected individuals having chronic, difficult-to-heal wounds. The care of wounds in people with EB can be guided by the Wound Bed Preparation paradigm. The treatment of chronic EB wounds is outlined with a quick reference guide of 12 consensus recommendations created by a panel of 11 experts. These recommendations were reviewed by a computer-facilitated modified Delphi process where 15 external reviewers (68.8% of whom reported having 11 or more years' experience with EB care). Inclusion of recommendations was contingent on 80% agreement from reviewers.

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Year:  2013        PMID: 23507695     DOI: 10.1097/01.ASW.0000428864.72412.b7

Source DB:  PubMed          Journal:  Adv Skin Wound Care        ISSN: 1527-7941            Impact factor:   2.347


  5 in total

1.  Understanding the outcomes of a home nursing programme for patients with epidermolysis bullosa: an Australian perspective.

Authors:  Louise J Stevens; Sue McKenna; Jennifer Marty; Allison J Cowin; Zlatko Kopecki
Journal:  Int Wound J       Date:  2014-12-03       Impact factor: 3.315

Review 2.  Allogeneic blood and bone marrow cells for the treatment of severe epidermolysis bullosa: repair of the extracellular matrix.

Authors:  Jakub Tolar; John E Wagner
Journal:  Lancet       Date:  2013-10-05       Impact factor: 79.321

3.  Betulin-Based Oleogel to Improve Wound Healing in Dystrophic Epidermolysis Bullosa: A Prospective Controlled Proof-of-Concept Study.

Authors:  Agnes Schwieger-Briel; Dimitra Kiritsi; Christoph Schempp; Cristina Has; Hauke Schumann
Journal:  Dermatol Res Pract       Date:  2017-05-22

4.  A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa.

Authors:  Amy S Paller; Elena Pope; Dan Rudin; Anna Malyala; Deborah Ramsdell; Ramsey Johnson; Hal Landy; Dedee F Murrell
Journal:  Orphanet J Rare Dis       Date:  2022-08-13       Impact factor: 4.303

Review 5.  Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa.

Authors:  May El Hachem; Giovanna Zambruno; Eva Bourdon-Lanoy; Annalisa Ciasulli; Christiane Buisson; Smail Hadj-Rabia; Andrea Diociaiuti; Carolina F Gouveia; Angela Hernández-Martín; Raul de Lucas Laguna; Mateja Dolenc-Voljč; Gianluca Tadini; Guglielmo Salvatori; Cristiana De Ranieri; Stephanie Leclerc-Mercier; Christine Bodemer
Journal:  Orphanet J Rare Dis       Date:  2014-05-20       Impact factor: 4.123

  5 in total

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