Literature DB >> 23485672

A community-based participatory research study of HIV and HPV vulnerabilities and prevention in two Pacific Islander communities: ethical challenges and solutions.

Anthony DiStefano1, Ruth Peters, Sora Park Tanjasiri, Lourdes Quitugua, Jeany Dimaculangan, Brian Hui, Angelica Barrera-Ng, 'Isileli Vunileva, Vanessa Tui'one, Lois Takahashi.   

Abstract

We describe ethical issues that emerged during a one-year CBPR study of HIV and human papillomavirus (HPV) vulnerabilities and prevention in two Pacific Islander (PI) communities, and the collaborative solutions to these challenges reached by academic and community partners. In our project case study analysis, we found that ethical tensions were linked mainly to issues of mutual trust and credibility in PI communities; cultural taboos associated with the nexus of religiosity and traditional PI culture; fears of privacy breaches in small, interconnected PI communities; and competing priorities of scientific rigor versus direct community services. Mutual capacity building and linking CBPR practice to PI social protocols are required for effective solutions and progress toward social justice outcomes.

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Mesh:

Year:  2013        PMID: 23485672      PMCID: PMC3691962          DOI: 10.1525/jer.2013.8.1.68

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  31 in total

1.  Contextualization of HIV and HPV risk and prevention among Pacific Islander young adults in Southern California.

Authors:  Anthony S DiStefano; Brian Hui; Angelica Barrera-Ng; Lourdes F Quitugua; Ruth Peters; Jeany Dimaculangan; Isileli Vunileva; Vanessa Tui'one; Lois M Takahashi; Sora Park Tanjasiri
Journal:  Soc Sci Med       Date:  2012-05-08       Impact factor: 4.634

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Creating community-based participatory research in a diverse community: a case study.

Authors:  Linda Silka; G Dean Cleghorn; Milagro Grullón; Trinidad Tellez
Journal:  J Empir Res Hum Res Ethics       Date:  2008-06       Impact factor: 1.742

4.  Using a community-based participatory approach to create a resource center for Native Hawaiian elders.

Authors:  Noreen Mokuau; Colette V Browne; Kathryn L Braun; Lehua B Choy
Journal:  Educ Health (Abingdon)       Date:  2008-12-03

Review 5.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

6.  Engaging nurse aide students to develop a survey to improve enrollment and retention in college.

Authors:  Jamie Kamailani Boyd; Jesika Y Hernandez; Kathryn L Braun
Journal:  Prog Community Health Partnersh       Date:  2011

7.  Community-based participatory research: a new and not-so-new approach to HIV/AIDS prevention, care, and treatment.

Authors:  Scott D Rhodes; Robert M Malow; Christine Jolly
Journal:  AIDS Educ Prev       Date:  2010-06

Review 8.  Biology of HPV in HIV infection.

Authors:  J Palefsky
Journal:  Adv Dent Res       Date:  2006-04-01

9.  Trends in cancer risk among people with AIDS in the United States 1980-2002.

Authors:  Eric A Engels; Ruth M Pfeiffer; James J Goedert; Phillip Virgo; Timothy S McNeel; Steven M Scoppa; Robert J Biggar
Journal:  AIDS       Date:  2006-08-01       Impact factor: 4.177

10.  HIV risk behaviors among Mahuwahine (native Hawaiian transgender women).

Authors:  Lyndall Ellingson; Carol Odo
Journal:  AIDS Educ Prev       Date:  2008-12
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  6 in total

1.  Community-Based Participatory Research Studies on HIV/AIDS Prevention, 2005-2014.

Authors:  Steven S Coughlin
Journal:  Jacobs J Community Med       Date:  2016-01-06

2.  Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.

Authors:  Myra Parker; Cynthia Pearson; Caitlin Donald; Celia B Fisher
Journal:  Am J Community Psychol       Date:  2019-07-29

3.  Racial Pride and Condom Use in Post-Incarcerated African-American Men Who Have Sex With Men and Women: Test of a Conceptual Model for the Men in Life Environments Intervention.

Authors:  Michael J Li; Heather Guentzel Frank; Nina T Harawa; John K Williams; Chih-Ping Chou; Ricky N Bluthenthal
Journal:  Arch Sex Behav       Date:  2016-04-26

Review 4.  Best Practices for Community-Engaged Research with Pacific Islander Communities in the US and USAPI: A Scoping Review.

Authors:  Pearl A McElfish; Karen Yeary; Imi A Sinclair; Susan Steelman; Monica K Esquivel; Nia Aitaoto; Keawe'aimoku Kaholokula; Rachel S Purvis; Britni L Ayers
Journal:  J Health Care Poor Underserved       Date:  2019

5.  Using community engagement to implement evidence-based practices for opioid use disorder: A data-driven paradigm & systems science approach.

Authors:  Nabila El-Bassel; Louisa Gilbert; Tim Hunt; Elwin Wu; Emmanuel A Oga; Trena I Mukherjee; Aimee N C Campbell; Nasim Sabounchi; Damara Gutnick; Robin Kerner; Kamilla L Venner; David Lounsbury; Terry T K Huang; Bruce Rapkin
Journal:  Drug Alcohol Depend       Date:  2021-03-18       Impact factor: 4.492

6.  Ethical Considerations of Community-based Participatory Research: Contextual Underpinnings for Developing Countries.

Authors:  Ensiyeh Jamshidi; Esmaeil Khedmati Morasae; Khandan Shahandeh; Reza Majdzadeh; Elham Seydali; Kiarash Aramesh; Nina Loori Abknar
Journal:  Int J Prev Med       Date:  2014-10
  6 in total

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