Literature DB >> 23477806

Ethical issues in using social media for health and health care research.

Rebecca McKee1.   

Abstract

The dramatic growth of social media in recent years has not gone unnoticed in the health sector. Media such as Facebook and Twitter are increasingly being used to disseminate information among health professionals and patients but, more recently, are being seen as a source of data for surveillance and research, for example by tracking public concerns or capturing discourses taking place outside traditional media outlets. This raises ethical issues, in particular the extent to which postings are considered public or private and the right to anonymity of those posting on social media. These issues are not clear cut as social media, by their nature, blur the boundary between public and private. There is a need for further research on the beliefs and expectations of those using social media in relation to how their material might be used in research. In contrast, there are areas where the ethical issues are more clear cut, such as when individuals are active participants in research, where traditional considerations apply.
Copyright © 2013. Published by Elsevier Ireland Ltd.

Entities:  

Mesh:

Year:  2013        PMID: 23477806     DOI: 10.1016/j.healthpol.2013.02.006

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  36 in total

1.  Social media in disaster risk reduction and crisis management.

Authors:  David E Alexander
Journal:  Sci Eng Ethics       Date:  2013-12-04       Impact factor: 3.525

2.  A systematic literature review of machine learning in online personal health data.

Authors:  Zhijun Yin; Lina M Sulieman; Bradley A Malin
Journal:  J Am Med Inform Assoc       Date:  2019-06-01       Impact factor: 4.497

3.  Social media and professionalism: a retrospective content analysis of Fitness to Practise cases heard by the GDC concerning social media complaints.

Authors:  P Neville
Journal:  Br Dent J       Date:  2017-09-08       Impact factor: 1.626

4.  "I feel like I've hit the bottom and have no idea what to do": Supportive social networking on Reddit for individuals with a desire to quit cannabis use.

Authors:  Shaina J Sowles; Melissa J Krauss; Lewam Gebremedhn; Patricia A Cavazos-Rehg
Journal:  Subst Abus       Date:  2017-07-13       Impact factor: 3.716

5.  Opportunities and challenges of using social media big data to assess mental health consequences of the COVID-19 crisis and future major events.

Authors:  Martin Tušl; Anja Thelen; Kailing Marcus; Alexandra Peters; Evgeniya Shalaeva; Benjamin Scheckel; Martin Sykora; Suzanne Elayan; John A Naslund; Ketan Shankardass; Stephen J Mooney; Marta Fadda; Oliver Gruebner
Journal:  Discov Ment Health       Date:  2022-06-27

6.  How Might the Genetics Profession Better Utilize Social Media.

Authors:  Rebekah A Moore; Anne L Matthews; Leslie Cohen
Journal:  J Genet Couns       Date:  2018-01-26       Impact factor: 2.537

7.  Social Media, Big Data, and Mental Health: Current Advances and Ethical Implications.

Authors:  Mike Conway; Daniel O'Connor
Journal:  Curr Opin Psychol       Date:  2016-06

8.  Findings and Ethical Considerations From a Thematic Analysis of Threads Within Tinnitus Online Support Groups.

Authors:  Eve Ainscough; Sandra N Smith; Kate Greenwell; Derek J Hoare
Journal:  Am J Audiol       Date:  2018-11-19       Impact factor: 1.493

9.  The care.data consensus? A qualitative analysis of opinions expressed on Twitter.

Authors:  Rebecca Hays; Gavin Daker-White
Journal:  BMC Public Health       Date:  2015-09-02       Impact factor: 3.295

Review 10.  The Use of Social Media for Health Research Purposes: Scoping Review.

Authors:  Charline Bour; Adrian Ahne; Susanne Schmitz; Camille Perchoux; Coralie Dessenne; Guy Fagherazzi
Journal:  J Med Internet Res       Date:  2021-05-27       Impact factor: 5.428

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