H Hesemann1, F Petermann, K Reif. 1. Zentrum für Klinische Psychologie und Rehabilitation, Universität Bremen, Grazer Str. 2 & 6, 28359, Bremen, Deutschland, hesemann@gmx.net.
Abstract
BACKGROUND: Many studies have shown that relatives of dementia patients often report not being given enough information about dementia and current treatment possibilities by the diagnosing physicians. Especially at the beginning of the disease, there is a high need for counseling. METHODS: By means of a newly developed questionnaire, 279 relatives of dementia patients were asked in an exploratory manner about the general situation and problems concerning the information provided to the patient during disclosure of the diagnosis. Quantitative data were presented descriptively and group-specific differences were tested for statistical significance. RESULTS: Information concerning the diagnosis by a specialist directly after disclosure of diagnosis, referral to regional support services, informational brochures, and a personal approach are determining factors concerning satisfying the relatives' need for information. CONCLUSION: Problem areas were determined and specific recommendations for the practice of patient disclosure and briefing of relatives were shown.
BACKGROUND: Many studies have shown that relatives of dementiapatients often report not being given enough information about dementia and current treatment possibilities by the diagnosing physicians. Especially at the beginning of the disease, there is a high need for counseling. METHODS: By means of a newly developed questionnaire, 279 relatives of dementiapatients were asked in an exploratory manner about the general situation and problems concerning the information provided to the patient during disclosure of the diagnosis. Quantitative data were presented descriptively and group-specific differences were tested for statistical significance. RESULTS: Information concerning the diagnosis by a specialist directly after disclosure of diagnosis, referral to regional support services, informational brochures, and a personal approach are determining factors concerning satisfying the relatives' need for information. CONCLUSION: Problem areas were determined and specific recommendations for the practice of patient disclosure and briefing of relatives were shown.
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