Literature DB >> 23456143

Becoming men: Gender, disability, and transitioning to adulthood.

Barbara E Gibson1, Bhavnita Mistry, Brett Smith, Karen K Yoshida, David Abbott, Sally Lindsay, Yani Hamdani.   

Abstract

Children and youth with progressive conditions are living longer, and there is increased interest in designing programs that will assist them with "transitioning" to adulthood. Almost none of the transitions research to date, however, has attended to the experiences of disabled boys in "becoming men," nor has there been critical conceptual work problematizing notions of "normal" adulthood or theorizing the complex, diverse, and gendered experiences of transitioning. In this Canadian study, we investigated the intersectionality of gender, disability, and emerging adulthood with 15 young men with Duchenne muscular dystrophy. Participants created audio diaries and photographs that were explored in in-depth interviews. Using a Bourdieusian lens and Arthur Frank's notion of the narrative habitus, we examined how participants re/negotiated identities in everyday practices. Our analysis suggested that disability, masculinities, and generational (life stage) identities intersected through "narratives of nondifference," wherein participants worked to establish identities as typical "guys." Within limited fields of school and work, participants distanced themselves from the label of "disabled" and discussed their successes and challenges in terms of normative developmental trajectories. We suggest that the pursuit of "normal" is reproduced and reinforced in health and social programs and closes off other narratives and possibilities.

Entities:  

Keywords:  critical; disability; masculinities; muscular dystrophy; youth

Mesh:

Year:  2013        PMID: 23456143     DOI: 10.1177/1363459313476967

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  11 in total

1.  A Systematic Review of the Role of Gender in Securing and Maintaining Employment Among Youth and Young Adults with Disabilities.

Authors:  Sally Lindsay; Elaine Cagliostro; Mikhaela Albarico; Dilakshan Srikanthan; Neda Mortaji
Journal:  J Occup Rehabil       Date:  2018-06

2.  A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy.

Authors:  Philip A Powell; Jill Carlton
Journal:  Qual Life Res       Date:  2022-09-01       Impact factor: 3.440

3.  Boys, Transitions, and Physical (In)activity: Exploring the Socio-Behavioural Mediators of Participation.

Authors:  Patrick Jachyra; Barbara E Gibson
Journal:  Physiother Can       Date:  2016       Impact factor: 1.037

4.  'Are We Not Human?' Stories of Stigma, Disability and HIV from Lusaka, Zambia and Their Implications for Access to Health Services.

Authors:  Janet A Parsons; Virginia A Bond; Stephanie A Nixon
Journal:  PLoS One       Date:  2015-06-03       Impact factor: 3.240

5.  Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey.

Authors:  Pangaja Paramsothy; Adrienne R Herron; Molly M Lamb; Kathi Kinnett; Jodi Wolff; Michele L Yang; Joyce Oleszek; Shree Pandya; Annie Kennedy; Darryl Cooney; Deborah Fox; Daniel Sheehan
Journal:  PLoS Curr       Date:  2018-08-21

6.  Needs management in families affected by childhood-onset dystrophinopathies.

Authors:  Kristin M Conway; Katy Eichinger; Christina Trout; Paul A Romitti; Katherine D Mathews; Shree K Pandya
Journal:  SAGE Open Med       Date:  2019-03-02

7.  Exploration of Gender-Sensitive Care in Vocational Rehabilitation Providers Working With Youth With Disabilities: Codevelopment of an Educational Simulation.

Authors:  Sally Lindsay; Kendall Kolne; Donna J Barker; Angela Colantonio; Jennifer Stinson; Sandra Moll; Nicole Thomson
Journal:  JMIR Form Res       Date:  2021-03-15

8.  Perspectives on Everyday Life Challenges of Danish Young People With Duchenne Muscular Dystrophy (DMD) on Corticosteroids.

Authors:  Charlotte Handberg; Ulla Werlauff; Ann-Lisbeth Højberg
Journal:  Glob Qual Nurs Res       Date:  2022-04-27

Review 9.  Duchenne and Becker muscular dystrophy in adolescents: current perspectives.

Authors:  Jennifer G Andrews; Richard A Wahl
Journal:  Adolesc Health Med Ther       Date:  2018-03-15

10.  "The Social Side Is as Important as the Physical Side": Older Men's Experiences of Physical Activity.

Authors:  Joanie Sims-Gould; Rei Ahn; Neville Li; Callista Anne Ottoni; Dawn C Mackey; Heather Anne McKay
Journal:  Am J Mens Health       Date:  2018-11
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