Literature DB >> 23425219

Twenty years of research shows UK child development team provision still varies widely for children with disability.

J R Parr1, N Jolleff, L Gray, J Gibbs, J Williams, H McConachie.   

Abstract

OBJECTIVES: To identify how services provided by child development teams (CDTs) have changed over 20 years. To what extent have major government initiatives aiming to improve the lives of children with disability and their families been implemented by teams?
DESIGN: Survey sent to every UK CDT in 2009/2010; comparison with data gathered in 1988 and 1999.
RESULTS: Ninety-four per cent (225/240) of CDTs responded; data on 242 teams were available from 1999 and 125 teams from 1988. Despite policy recommendations advocating the value of interdisciplinary team working, there was a decline in numbers of professionals working within the CDT multidisciplinary team. One-third of all teams reported a reduction in their funding over the last 5 years. However, specialist clinics provided increased. Teams reported patchy adoption of national initiatives designed to improve provision. Transition services were underdeveloped.
CONCLUSIONS: This comprehensive survey of UK CDT service provision, as well as national studies of the healthcare experience of families with a disabled child, shows that improvements in provision are required.
© 2013 John Wiley & Sons Ltd.

Entities:  

Keywords:  child development teams; neurodevelopment; neurodisability; services

Mesh:

Year:  2013        PMID: 23425219     DOI: 10.1111/cch.12025

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  5 in total

Review 1.  Autism spectrum disorder: Consensus guidelines on assessment, treatment and research from the British Association for Psychopharmacology.

Authors:  Oliver D Howes; Maria Rogdaki; James L Findon; Robert H Wichers; Tony Charman; Bryan H King; Eva Loth; Gráinne M McAlonan; James T McCracken; Jeremy R Parr; Carol Povey; Paramala Santosh; Simon Wallace; Emily Simonoff; Declan G Murphy
Journal:  J Psychopharmacol       Date:  2017-12-14       Impact factor: 4.153

2.  Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.

Authors:  Jeremy Parr; Lindsay Pennington; Helen Taylor; Dawn Craig; Christopher Morris; Helen McConachie; Jill Cadwgan; Diane Sellers; Morag Andrew; Johanna Smith; Deborah Garland; Elaine McColl; Charlotte Buswell; Julian Thomas; Allan Colver
Journal:  Health Technol Assess       Date:  2021-03       Impact factor: 4.014

3.  Designing and recruiting to UK autism spectrum disorder research databases: do they include representative children with valid ASD diagnoses?

Authors:  F Warnell; B George; H McConachie; M Johnson; R Hardy; J R Parr
Journal:  BMJ Open       Date:  2015-09-04       Impact factor: 2.692

Review 4.  Common visual problems in children with disability.

Authors:  Alison Salt; Jenefer Sargent
Journal:  Arch Dis Child       Date:  2014-08-27       Impact factor: 3.791

5.  Drooling Reduction Intervention randomised trial (DRI): comparing the efficacy and acceptability of hyoscine patches and glycopyrronium liquid on drooling in children with neurodisability.

Authors:  Jeremy R Parr; Emma Todhunter; Lindsay Pennington; Deborah Stocken; Jill Cadwgan; Anne E O'Hare; Catherine Tuffrey; Jane Williams; Mike Cole; Allan F Colver
Journal:  Arch Dis Child       Date:  2017-11-30       Impact factor: 3.791

  5 in total

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