Jackie Ellis1, Chris Dowrick, Mari Lloyd-Williams. 1. Academic Palliative and Supportive Care Studies Group (APSCSG), Division of Health Service Research, University of Liverpool, Liverpool, UK.
Abstract
OBJECTIVE: To explore the individual experiences of those who had experienced the death of a parent(s) before the age of 18, and investigate how such experiences were perceived to impact on adult life. DESIGN: An exploratory qualitative design using written (n = 5) and oral (n = 28) narratives and narrative analysis was adopted to explore the experiences 33 adults (7 men and 26 women) who had experienced parental death during childhood. SETTING: UK participants: Individuals living in the North West of England who had lost a parent(s) before the age of 18. MAIN OUTCOME MEASURES: Views of adults bereaved of a parent before the age of 18 of impact of parental loss in adult life. RESULTS: While individual experiences of bereavement in childhood were unique and context bound, the narratives were organized around three common themes: disruptions and continuity, the role of social networks and affiliations and communication and the extent to which these dynamics mediated the bereavement experience and the subsequent impact on adult life. Specifically they illustrate how discontinuity (or continuity that does not meet the child's needs), a lack of appropriate social support for both the child and surviving parent and a failure to provide clear and honest information at appropriate time points relevant to the child's level of understanding was perceived to have a negative impact in adulthood with regards to trust, relationships, self-esteem, feeling of self-worth loneliness and isolation and the ability to express feelings. A model is suggested for identifying and supporting those that may be more vulnerable to less favourable outcomes in adult life. CONCLUSIONS: The findings suggest that if the negative consequences are to be minimized it is crucial that guidelines for 'best practice' that recognize the complex nature of the bereavement experience are followed.
OBJECTIVE: To explore the individual experiences of those who had experienced the death of a parent(s) before the age of 18, and investigate how such experiences were perceived to impact on adult life. DESIGN: An exploratory qualitative design using written (n = 5) and oral (n = 28) narratives and narrative analysis was adopted to explore the experiences 33 adults (7 men and 26 women) who had experienced parental death during childhood. SETTING: UK participants: Individuals living in the North West of England who had lost a parent(s) before the age of 18. MAIN OUTCOME MEASURES: Views of adults bereaved of a parent before the age of 18 of impact of parental loss in adult life. RESULTS: While individual experiences of bereavement in childhood were unique and context bound, the narratives were organized around three common themes: disruptions and continuity, the role of social networks and affiliations and communication and the extent to which these dynamics mediated the bereavement experience and the subsequent impact on adult life. Specifically they illustrate how discontinuity (or continuity that does not meet the child's needs), a lack of appropriate social support for both the child and surviving parent and a failure to provide clear and honest information at appropriate time points relevant to the child's level of understanding was perceived to have a negative impact in adulthood with regards to trust, relationships, self-esteem, feeling of self-worth loneliness and isolation and the ability to express feelings. A model is suggested for identifying and supporting those that may be more vulnerable to less favourable outcomes in adult life. CONCLUSIONS: The findings suggest that if the negative consequences are to be minimized it is crucial that guidelines for 'best practice' that recognize the complex nature of the bereavement experience are followed.
Authors: Lucia Martinčeková; Matthew J Jiang; Jamal D Adams; David Menendez; Iseli G Hernandez; Gregory Barber; Karl S Rosengren Journal: Death Stud Date: 2018-12-12
Authors: Jeffrey R Hanna; Elizabeth Rapa; Mary Miller; Madeleine Turner; Louise J Dalton Journal: Am J Hosp Palliat Care Date: 2021-09-19 Impact factor: 2.090