Literature DB >> 23386185

Return of research results from genomic biobanks: a call for data.

Marianna J Bledsoe, Ellen Wright Clayton, Amy L McGuire, William E Grizzle, P Pearl O'Rourke, Nikolajs Zeps.   

Abstract

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Year:  2013        PMID： 23386185     DOI： 10.1038/gim.2012.163

Source DB:  PubMed          Journal:  Genet Med        ISSN： 1098-3600            Impact factor:   8.822


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  7 in total

1.  Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide.

Authors:  Susan M Wolf; Wylie Burke; Barbara A Koenig
Journal:  J Law Med Ethics       Date:  2015       Impact factor: 1.718

2.  Issues in the Use of Human Tissues to Support Precision Medicine.

Authors:  William E Grizzle
Journal:  J Health Care Poor Underserved       Date:  2019

3.  Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing.

Authors:  Layla Shahmirzadi; Elizabeth C Chao; Erika Palmaer; Melissa C Parra; Sha Tang; Kelly D Farwell Gonzalez
Journal:  Genet Med       Date:  2013-10-10       Impact factor: 8.822

4.  Rare disease research: Breaking the privacy barrier.

Authors:  Deborah Mascalzoni; Angelo Paradiso; Matts Hansson
Journal:  Appl Transl Genom       Date:  2014-04-18

5.  Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Jill Bennett Gaieski; Amanda Brandt; Danielle McKenna; Jessica Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek
Journal:  JCO Precis Oncol       Date:  2018-04-16

Review 6.  Funding considerations for the disclosure of genetic incidental findings in biobank research.

Authors:  L Black; D Avard; M H Zawati; B M Knoppers; J Hébert; G Sauvageau
Journal:  Clin Genet       Date:  2013-06-10       Impact factor: 4.438

7.  Research participants' experiences with return of genetic research results and preferences for web-based alternatives.

Authors:  Jill B Gaieski; Linda Patrick-Miller; Brian L Egleston; Kara N Maxwell; Sarah Walser; Laura DiGiovanni; Jamie Brower; Dominique Fetzer; Amanda Ganzak; Danielle McKenna; Jessica M Long; Jacquelyn Powers; Jill E Stopfer; Katherine L Nathanson; Susan M Domchek; Angela R Bradbury
Journal:  Mol Genet Genomic Med       Date:  2019-08-03       Impact factor: 2.183
  7 in total

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