Literature DB >> 23375750

Normalising birth for women with a disability: the challenges facing practitioners.

Dympna Walsh-Gallagher1, Roy Mc Conkey, Marlene Sinclair, Ruth Clarke.   

Abstract

UNLABELLED: Previous research on pregnant women with a disability and their experience of maternity care demonstrated that these mothers perceived themselves to be the 'perennial outsiders' with midwives automatically categorising them as 'high risk' because of their disability. They also felt that their ability to make choices, stay in control and have continuity of care was not considered to be part of the mainstream maternity care for them because they did not fit the 'normal' category.
OBJECTIVE: this research was undertaken to explore the perceptions of two multiprofessional teams in Irish hospitals as to how maternity services to these mothers can be improved. PARTICIPANTS: nineteen health-care professionals from midwifery, social work and public health nursing were recruited.
SETTING: two from two major maternity hospitals, one in the North and one in the South of Ireland. were featured.
DESIGN: the method chosen was a qualitative approach, using focus group interviews in which case studies depicting a range and breadth of women's birthing experiences were presented and discussed. Newell and Burnard's (2006) six stage approach to thematic content analysis was used.
FINDINGS: the professionals found the disabled women's stories believable, upsetting and challenging. KEY
CONCLUSIONS: Staff acknowledged their 'lack of competence, knowledge and skill' regarding disability and felt that, on reflection, their failure to consult and collaborate with disabled women contributed to their failing to provide individualised woman centred care to women with a disability. IMPLICATIONS OF PRACTICe: A series of recommendations for improved practice was agreed.
Copyright © 2011 Elsevier Ltd. All rights reserved.

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Year:  2013        PMID: 23375750     DOI: 10.1016/j.midw.2011.10.007

Source DB:  PubMed          Journal:  Midwifery        ISSN: 0266-6138            Impact factor:   2.372


  7 in total

1.  Reproductive Health in Women with Physical Disability: A Conceptual Framework for the Development of New Patient-Reported Outcome Measures.

Authors:  Claire Z Kalpakjian; Jodi M Kreschmer; Mary D Slavin; Pamela A Kisala; Elisabeth H Quint; Nancy D Chiaravalloti; Natalie Jenkins; Tamara Bushnik; Dagmar Amtmann; David S Tulsky; Roxanne Madrid; Rebecca Parten; Michael Evitts; Carolyn L Grawi
Journal:  J Womens Health (Larchmt)       Date:  2020-05-19       Impact factor: 2.681

2.  Maternal disability and risk for pregnancy, delivery, and postpartum complications: a systematic review and meta-analysis.

Authors:  Lesley A Tarasoff; Saranyah Ravindran; Hannan Malik; Dinara Salaeva; Hilary K Brown
Journal:  Am J Obstet Gynecol       Date:  2019-07-12       Impact factor: 8.661

3.  Development of a new pregnancy informational and decisional needs survey for women with physical disabilities.

Authors:  Claire Z Kalpakjian; Heidi J Haapala; Susan D Ernst; Brittany R Orians; Melissa L Barber; Ashley L Wiseman; Lukonde Mulenga; Shannen Bolde; Sara Rosenblum; Gina M Jay
Journal:  Disabil Health J       Date:  2020-12-24       Impact factor: 4.615

Review 4.  Access and utilisation of maternity care for disabled women who experience domestic abuse: a systematic review.

Authors:  Jenna P Breckenridge; John Devaney; Thilo Kroll; Anne Lazenbatt; Julie Taylor; Caroline Bradbury-Jones
Journal:  BMC Pregnancy Childbirth       Date:  2014-07-17       Impact factor: 3.007

5.  Experiences of Austrian mothers with mobility or sensory impairments during pregnancy, childbirth and the puerperium: a qualitative study.

Authors:  Barbara Schildberger; Christoph Zenzmaier; Martina König-Bachmann
Journal:  BMC Pregnancy Childbirth       Date:  2017-06-26       Impact factor: 3.007

6.  Nature and extent of intellectual disability nursing research in Ireland: a scoping review to inform health and health service research.

Authors:  Owen Doody; Maria E Bailey; Therese Hennessy
Journal:  BMJ Open       Date:  2021-10-06       Impact factor: 2.692

7.  Dignity and respect during pregnancy and childbirth: a survey of the experience of disabled women.

Authors:  Jenny Hall; Vanora Hundley; Bethan Collins; Jillian Ireland
Journal:  BMC Pregnancy Childbirth       Date:  2018-08-13       Impact factor: 3.007

  7 in total

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