Literature DB >> 23371972

Clinical registries: governance, management, analysis and applications.

Graeme L Hickey1, Stuart W Grant, Rebecca Cosgriff, Ioannis Dimarakis, Domenico Pagano, Arie P Kappetein, Ben Bridgewater.   

Abstract

Clinical registries will have an increasingly important role to play in health-care, with a number already established in cardiac surgery. This review covers the fundamentals of establishing and managing clinical registries, including legal and ethical frameworks along with intellectual property attribution. Also discussed are important issues relating to the processing of data, data extraction and conducting analyses using registry data.

Entities:  

Keywords:  Databases; Ethics; Management; Registries; Research

Mesh：

Year:  2013        PMID： 23371972     DOI： 10.1093/ejcts/ezt018

Source DB:  PubMed          Journal:  Eur J Cardiothorac Surg        ISSN： 1010-7940            Impact factor:   4.191


  21 in total

1.  Natural language inference for curation of structured clinical registries from unstructured text.

Authors:  Bethany Percha; Kereeti Pisapati; Cynthia Gao; Hank Schmidt
Journal:  J Am Med Inform Assoc       Date:  2021-12-28       Impact factor: 4.497

2.  Minimally invasive mitral valve surgery after failed transcatheter mitral valve repair in an intermediate-risk cohort.

Authors:  Serdar Akansel; Markus Kofler; Karel M Van Praet; Axel Unbehaun; Simon H Sündermann; Stephan Jacobs; Volkmar Falk; Jörg Kempfert
Journal:  Interact Cardiovasc Thorac Surg       Date:  2022-07-09

3.  Indirect Impact of the COVID-19 Pandemic on Activity and Outcomes of Transcatheter and Surgical Treatment of Aortic Stenosis in England.

Authors:  Glen P Martin; Nick Curzen; Andrew T Goodwin; James Nolan; Lognathen Balacumaraswami; Peter F Ludman; Evangelos Kontopantelis; Jianhua Wu; Chris P Gale; Mark A de Belder; Mamas A Mamas
Journal:  Circ Cardiovasc Interv       Date:  2021-05-18       Impact factor: 6.546

4.  Is social deprivation an independent predictor of outcomes following cardiac surgery? An analysis of 240,221 patients from a national registry.

Authors:  James Barnard; Stuart W Grant; Graeme L Hickey; Ben Bridgewater
Journal:  BMJ Open       Date:  2015-06-29       Impact factor: 2.692

5.  European Multicenter Study on Coronary Artery Bypass Grafting (E-CABG registry): Study Protocol for a Prospective Clinical Registry and Proposal of Classification of Postoperative Complications.

Authors:  Fausto Biancari; Vito G Ruggieri; Andrea Perrotti; Peter Svenarud; Magnus Dalén; Francesco Onorati; Giuseppe Faggian; Giuseppe Santarpino; Daniele Maselli; Carmelo Dominici; Saverio Nardella; Francesco Musumeci; Riccardo Gherli; Giovanni Mariscalco; Nicola Masala; Antonino S Rubino; Carmelo Mignosa; Marisa De Feo; Alessandro Della Corte; Ciro Bancone; Sidney Chocron; Giuseppe Gatti; Tiziano Gherli; Eeva-Maija Kinnunen; Tatu Juvonen
Journal:  J Cardiothorac Surg       Date:  2015-06-30       Impact factor: 1.637

6.  Minimally Invasive Versus Conventional Aortic Valve Replacement: A Propensity-Matched Study From the UK National Data.

Authors:  Rizwan Q Attia; Graeme L Hickey; Stuart W Grant; Ben Bridgewater; James C Roxburgh; Pankaj Kumar; Paul Ridley; Moninder Bhabra; Russell W J Millner; Thanos Athanasiou; Roberto Casula; Andrew Chukwuemka; Thasee Pillay; Christopher P Young
Journal:  Innovations (Phila)       Date:  2016 Jan-Feb

Review 7.  Unwarranted Variation in the Quality of Care for Patients With Diseases of the Thoracic Aorta.

Authors:  Alex Bottle; Giovanni Mariscalco; Matthew A Shaw; Umberto Benedetto; Athanasios Saratzis; Silvia Mariani; Mohamad Bashir; Paul Aylin; David Jenkins; Aung Y Oo; Gavin J Murphy
Journal:  J Am Heart Assoc       Date:  2017-03-14       Impact factor: 5.501

8.  A contemporary risk model for predicting 30-day mortality following percutaneous coronary intervention in England and Wales.

Authors:  Katherine S L McAllister; Peter F Ludman; William Hulme; Mark A de Belder; Rodney Stables; Saqib Chowdhary; Mamas A Mamas; Matthew Sperrin; Iain E Buchan
Journal:  Int J Cardiol       Date:  2016-02-17       Impact factor: 4.164

9.  Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review.

Authors:  Dewan Md Emdadul Hoque; Varuni Kumari; Masuma Hoque; Rasa Ruseckaite; Lorena Romero; Sue M Evans
Journal:  PLoS One       Date:  2017-09-08       Impact factor: 3.240

10.  Surgeon length of service and risk-adjusted outcomes: linked observational analysis of the UK National Adult Cardiac Surgery Audit Registry and General Medical Council Register.

Authors:  Graeme L Hickey; Stuart W Grant; Nick Freemantle; David Cunningham; Christopher M Munsch; Steven A Livesey; James Roxburgh; Iain Buchan; Ben Bridgewater
Journal:  J R Soc Med       Date:  2014-09       Impact factor: 5.344
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