Literature DB >> 23362313

Health risk behaviors in adolescents and emerging adults with congenital heart disease: psychometric properties of the Health Behavior Scale-Congenital Heart Disease.

Eva Goossens1, Koen Luyckx, Nele Mommen, Marc Gewillig, Werner Budts, Nele Zupancic, Philip Moons.   

Abstract

BACKGROUND: To optimize long-term outcomes, patients with congenital heart disease (CHD) should adopt health-promoting behaviors. Studies on health behavior in afflicted patients are scarce and comparability of study results is limited. To enlarge the body of evidence, we have developed the Health Behavior Scale-Congenital Heart Disease (HBS-CHD). AIMS: We examined the psychometric properties of the HBS-CHD by providing evidence for (a) the content validity; (b) validity based on the relationships with other variables; (c) reliability in terms of stability; and (d) responsiveness.
METHODS: Ten experts rated the relevance of the HBS-CHD items. The item content validity index (I-CVI) and the averaged scale content validity index (S-CVI/Ave); the modified multi-rater Kappa and proportion of missing values for each question were calculated. Relationships with other variables were evaluated using six hypotheses that were tested in 429 adolescents with CHD. Stability of the instrument was assessed using Heise's method; and responsiveness was tested by calculating the Guyatt's Responsiveness Index (GRI).
RESULTS: Overall, 86.3% of the items had a good to excellent content validity; the S-CVI/Ave (0.81) and multi-rater Kappa (0.78) were adequate. The average proportion of missing values was low (1.2%). Because five out of six hypotheses were confirmed, evidence for the validity of the HBS-CHD based on relationships with other variables was provided. The stability of the instrument could not be confirmed based on our data. The GRI showed good to excellent capacity of the HBS-CHD to detect clinical changes in the health behavior over time.
CONCLUSION: We found that the HBS-CHD is a valid and responsive questionnaire to assess health behaviors in patients with CHD.

Entities:  

Keywords:  Heart defects; adolescence; congenital; health behavior; life style; psychometric properties; reliability; validity

Mesh:

Year:  2013        PMID: 23362313     DOI: 10.1177/1474515113475934

Source DB:  PubMed          Journal:  Eur J Cardiovasc Nurs        ISSN: 1474-5151            Impact factor:   3.908


  8 in total

1.  Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.

Authors:  Maryanne Caruana; Silke Apers; Adrienne H Kovacs; Koen Luyckx; Corina Thomet; Werner Budts; Maayke Sluman; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Bengt Johansson; Alexandra Soufi; Edward Callus; Philip Moons; Victor Grech
Journal:  Pediatr Cardiol       Date:  2017-03-24       Impact factor: 1.655

2.  Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES project).

Authors:  Mariela Acuña Mora; Carina Sparud-Lundin; Ewa-Lena Bratt; Philip Moons
Journal:  BMJ Open       Date:  2017-04-17       Impact factor: 2.692

3.  Geographical variation and predictors of physical activity level in adults with congenital heart disease.

Authors:  Lena Larsson; Bengt Johansson; Camilla Sandberg; Silke Apers; Adrienne H Kovacs; Koen Luyckx; Corina Thomet; Werner Budts; Junko Enomoto; Maayke A Sluman; Jou-Kou Wang; Jamie L Jackson; Paul Khairy; Stephen C Cook; Luis Alday; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Gwen Rempel; Samuel Menahem; Maryanne Caruana; Martha Tomlin; Alexandra Soufi; Susan M Fernandes; Kamila White; Edward Callus; Shelby Kutty; Philip Moons
Journal:  Int J Cardiol Heart Vasc       Date:  2018-11-22

4.  Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents.

Authors:  Åsa Burström; Mariela Acuña Mora; Maria Öjmyr-Joelsson; Carina Sparud-Lundin; Annika Rydberg; Katarina Hanseus; Björn Frenckner; Margret Nisell; Philip Moons; Ewa-Lena Bratt
Journal:  J Fam Nurs       Date:  2019-07-25       Impact factor: 3.818

5.  Phenotypes of adults with congenital heart disease around the globe: a cluster analysis.

Authors:  Edward Callus; Silvana Pagliuca; Sara Boveri; Federico Ambrogi; Koen Luyckx; Adrienne H Kovacs; Silke Apers; Werner Budts; Junko Enomoto; Maayke A Sluman; Jou-Kou Wang; Jamie L Jackson; Paul Khairy; Stephen C Cook; Shanthi Chidambarathanu; Luis Alday; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Bengt Johansson; Andrew S Mackie; Samuel Menahem; Maryanne Caruana; Gruschen Veldtman; Alexandra Soufi; Susan M Fernandes; Kamila White; Shelby Kutty; Philip Moons
Journal:  Health Qual Life Outcomes       Date:  2021-02-10       Impact factor: 3.186

6.  Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries.

Authors:  Chun-Wei Lu; Jou-Kou Wang; Hsiao-Ling Yang; Adrienne H Kovacs; Koen Luyckx; Francisco Javier Ruperti-Repilado; Alexander Van De Bruaene; Junko Enomoto; Maayke A Sluman; Jamie L Jackson; Paul Khairy; Stephen C Cook; Shanthi Chidambarathanu; Luis Alday; Erwin Oechslin; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Bengt Johansson; Andrew S Mackie; Samuel Menahem; Maryanne Caruana; Gruschen Veldtman; Alexandra Soufi; Susan M Fernandes; Kamila White; Edward Callus; Shelby Kutty; Silke Apers; Philip Moons
Journal:  J Am Heart Assoc       Date:  2022-04-26       Impact factor: 6.106

7.  Association between nutritional status and subjective health status in chronically ill children attending special schools.

Authors:  Koen Joosten; Kelly van der Velde; Pieter Joosten; Hans Rutten; Jessie Hulst; Karolijn Dulfer
Journal:  Qual Life Res       Date:  2015-09-11       Impact factor: 4.147

8.  Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol.

Authors:  Anna Lena Brorsson; Ewa-Lena Bratt; Philip Moons; Anna Ek; Elisabeth Jelleryd; Torun Torbjörnsdotter; Carina Sparud-Lundin
Journal:  BMJ Open       Date:  2020-04-14       Impact factor: 2.692

  8 in total

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