Literature DB >> 23348661

Meeting reality: young adult cancer survivors' experiences of reentering everyday life after cancer treatment.

May Aasebø Hauken1, Torill Marie Bogsnes Larsen, Ingrid Holsen.   

Abstract

BACKGROUND: Cancer in young adults is rare, but the intensity of cancer treatment increases the risk of physical and psychosocial impacts on patients' entire lives. Young adult survivors are underrepresented in research, and knowledge of cancer survivors in this age group is scarce, especially knowledge of transition from cancer treatment to everyday life.
OBJECTIVE: The objective of this study was to explore how young adult cancer survivors experience reentering everyday life after cancer treatment.
METHODS: A qualitative, phenomenological approach was used and included 20 young adult survivors (aged 24-35 years) with different cancer diagnoses allocated to a rehabilitation program. Semistructured interviews were conducted, and the transcripts were analyzed qualitatively using Systematic Text Condensation method.
RESULTS: "Meeting reality" was identified as a bridging theme, explained by 4 main themes important to the informants: (1) lack of preparation, (2) late effects, (3) lack of understanding, and (4) being neither sick nor healthy.
CONCLUSIONS: Informants were unprepared for reentering everyday life after cancer treatment and experienced a mismatch of their expectations with reality, particularly in the holistic impact of late effects. Moreover, reentering everyday life was characterized by a lack of understanding from their network and even healthcare providers who conducted follow-ups. The informants experienced reentering everyday life as being much harder than expected, and they felt isolated as well as neither sick nor healthy. IMPLICATIONS FOR PRACTICE: The results suggest a major shortcoming in both preparation for survivorship, multidisciplinary follow-ups, and knowledge. A shift to a more holistic perspective in survivorship care is suggested.

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Year:  2013        PMID: 23348661     DOI: 10.1097/NCC.0b013e318278d4fc

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  10 in total

1.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

2.  A rising trend in the incidence of advanced gastric cancer in young Hispanic men.

Authors:  Shaila J Merchant; Joseph Kim; Audrey H Choi; Virginia Sun; Joseph Chao; Rebecca Nelson
Journal:  Gastric Cancer       Date:  2016-02-29       Impact factor: 7.370

Review 3.  Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review.

Authors:  Marie Barnett; Glynnis McDonnell; Antonio DeRosa; Tammy Schuler; Errol Philip; Lisa Peterson; Kaitlin Touza; Sabrina Jhanwar; Thomas M Atkinson; Jennifer S Ford
Journal:  J Cancer Surviv       Date:  2016-02-26       Impact factor: 4.442

4.  Providing Information About Late Effects During Routine Follow-Up Consultations Between Pediatric Oncologists and Adolescent Survivors: A Video-Based, Observational Study.

Authors:  Anneli V Mellblom; Live Korsvold; Arnstein Finset; Jon Loge; Ellen Ruud; Hanne C Lie
Journal:  J Adolesc Young Adult Oncol       Date:  2015-12       Impact factor: 2.223

5.  Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.

Authors:  Amy J Walker; Frances M Lewis; Yuting Lin; Ellen Zahlis; Abby R Rosenberg
Journal:  Cancer Nurs       Date:  2019 Jul/Aug       Impact factor: 2.592

Review 6.  Adolescent and young adult patients with cancer: a milieu of unique features.

Authors:  Leonard Sender; Keri B Zabokrtsky
Journal:  Nat Rev Clin Oncol       Date:  2015-05-26       Impact factor: 66.675

7.  Working toward a good life as a cancer survivor: a longitudinal study on positive health outcomes of a rehabilitation program for young adult cancer survivors.

Authors:  May Aasebø Hauken; Ingrid Holsen; Eirik Fismen; Torill Marie Bogsnes Larsen
Journal:  Cancer Nurs       Date:  2015 Jan-Feb       Impact factor: 2.592

8.  The support and information needs of adolescents and young adults with cancer when active treatment ends.

Authors:  Sarah Lea; Ana Martins; Lorna A Fern; Matthew Bassett; Maria Cable; Gary Doig; Sue Morgan; Louise Soanes; Michael Whelan; Rachel M Taylor
Journal:  BMC Cancer       Date:  2020-07-28       Impact factor: 4.430

9.  Salivary Alpha-Amylase Reactivity in Breast Cancer Survivors.

Authors:  Cynthia Wan; Marie-Ève Couture-Lalande; Tasha A Narain; Sophie Lebel; Catherine Bielajew
Journal:  Int J Environ Res Public Health       Date:  2016-03-23       Impact factor: 3.390

10.  The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors.

Authors:  Jennifer M Jones; Margaret Fitch; Jared Bongard; Manjula Maganti; Abha Gupta; Norma D'Agostino; Chana Korenblum
Journal:  J Clin Med       Date:  2020-05-13       Impact factor: 4.241

  10 in total

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