Literature DB >> 23341445

The experiences of suffering of palliative care informal caregivers in Malaysia: a thematic analysis.

Tan Seng Beng1, Ng Chong Guan, Lim Kheng Seang, Subramaniam Pathmawathi, Moy Foong Ming, Lim Ee Jane, Loh Ee Chin, Lam Chee Loong.   

Abstract

A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 15 palliative care informal caregivers in University Malaya Medical Centre. The data were thematically analyzed. Seven basic themes were generated (1) empathic suffering, (2) anticipatory grief, (3) obsessive-compulsive suffering, (4) helpless-powerless suffering, (5) obligatory suffering, (6) impedimental suffering, and (7) repercussion suffering. A model of compassion suffering was conceptualized from the analysis. This model may serve as a guide in the assessment and management of suffering in palliative care informal caregivers.

Entities:  

Keywords:  Malaysia; analysis; distress; informal caregivers; palliative care; psychosocial issues; suffering; thematic

Mesh：

Year:  2013        PMID： 23341445     DOI： 10.1177/1049909112473633

Source DB:  PubMed          Journal:  Am J Hosp Palliat Care        ISSN： 1049-9091            Impact factor:   2.500


  6 in total

1.  Outcomes for End-of-Life Patients with Anticipatory Grieving: Insights from Practice with Standardized Nursing Terminologies within an Interoperable Internet-based Electronic Health Record.

Authors:  Julie Johnson; Muhammad Kamran Lodhi; Umer Cheema; Janet Stifter; Karen Dunn-Lopez; Yingwei Yao; Andrew Johnson; Gail M Keenan; Rashid Ansari; Ashfaq Khokhar; Diana J Wilkie
Journal:  J Hosp Palliat Nurs       Date:  2017-06       Impact factor: 1.918

2.  Toward a model of continuous care: A necessity for caregiving partners.

Authors:  Melissa P Masterson; Karen E Hurley; Talia Zaider; David W Kissane
Journal:  Palliat Support Care       Date:  2015-02-11

3.  Relationship Between Post-traumatic Stress Symptoms and Anticipatory Grief in Family Caregivers of Patients With Advanced Lung Cancer: The Mediation Role of Illness Uncertainty.

Authors:  Di Sun; Zhihui Mao; Xu Zhang; Jiaojiao Li; Lijuan Zhang
Journal:  Front Psychiatry       Date:  2022-06-09       Impact factor: 5.435

4.  Expanding the Palliative Care Domains to Meet the Needs of a Community-Based Supportive Care Model.

Authors:  Eric W Anderson; Monica S Frazer; Sandra E Schellinger
Journal:  Am J Hosp Palliat Care       Date:  2017-04-20       Impact factor: 2.500

5.  "It Has Changed My Life": An Exploration of Caregiver Experiences in Serious Illness.

Authors:  Eric W Anderson; Katie M White
Journal:  Am J Hosp Palliat Care       Date:  2017-04-16       Impact factor: 2.500

6.  The experience of family caregivers of patients with cancer in an Asian country: A grounded theory approach.

Authors:  Martina Sinta Kristanti; Christantie Effendy; Adi Utarini; Myrra Vernooij-Dassen; Yvonne Engels
Journal:  Palliat Med       Date:  2019-03-27       Impact factor: 4.762
  6 in total

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