Literature DB >> 23323681

Managing information and knowledge within maternity services: Privacy and consent issues.

Vikraman Baskaran1, Kim Davis, Rajeev K Bali, Raouf N G Naguib, Nilmini Wickramasinghe.   

Abstract

OBJECTIVE: Electronic Patient Records have improved vastly the quality and efficiency of care delivered. However, the formation of single demographic database and the ease of electronic information sharing give rise to many concerns including issues of consent, by whom and how data are accessed and used. This paper examines the organizational and socio-technical issues related to privacy, confidentiality and security when employing electronic records within a maternity service hospital in England.
METHODS: A preliminary questionnaire was administered (n  =  52), in total, 24 responses were received. Sixteen responses were from personnel in the information technology department, 5 from health information department and 3 from midwifery managers. This was followed by a semi-structured interview with representatives from the clinical and technological side.
RESULTS: A number of issues related to information governance (IG) have been identified, especially breaches on sharing personal information without consent from the patients have been identified as one immediate challenge that needs to be fixed.
CONCLUSION: There is an immediate need for more robust, realistic, built-in accountability both locally and nationally on data sharing. A culture of ownership and strict adherence to IG principles is paramount. Focused training in the area of data, information and knowledge sharing will bring in a balance of legitimate usage against the individual's rights to confidentiality and privacy.

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Year:  2013        PMID: 23323681     DOI: 10.3109/17538157.2012.735732

Source DB:  PubMed          Journal:  Inform Health Soc Care        ISSN: 1753-8157            Impact factor:   2.439


  2 in total

1.  Patient data and patient rights: Swiss healthcare stakeholders' ethical awareness regarding large patient data sets - a qualitative study.

Authors:  Corine Mouton Dorey; Holger Baumann; Nikola Biller-Andorno
Journal:  BMC Med Ethics       Date:  2018-03-07       Impact factor: 2.652

Review 2.  Privacy of electronic health records: a review of the literature.

Authors:  Katherine Gariépy-Saper; Nicholas Decarie
Journal:  J Can Health Libr Assoc       Date:  2021-04-02
  2 in total

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