Literature DB >> 23291505

Similarities amid the difference: caregiving burden and adaptation outcomes in dyads of parents and their children with and without cerebral palsy.

C Carona1, C Crespo, M C Canavarro.   

Abstract

This study had two main objectives: first, to examine the direct and indirect effects, via social support, of caregiving burden on the adaptation outcomes of children/adolescents with cerebral palsy and their parents; and second, to assess the invariance of such models in clinical vs. healthy subsamples. Participants were 210 dyads of children/adolescents and one of their parents (total N=420), divided in 93 dyads of children/adolescents with cerebral palsy and 117 dyads of children/adolescents with no medical diagnosis. Data on caregiving burden, social support and adaptation outcomes were obtained through self-report questionnaires. Caregiving burden was linked to parents and their children's psychological maladjustment and quality of life both directly (except for children's quality of life) and indirectly through social support. Findings were invariant across clinical and healthy subsamples. Caregiving burden may influence adaptation outcomes of children/adolescents with CP and their parents both directly and via their social support perceptions. These patterns are similar to those observed in typically developing children/adolescents.
Copyright © 2012 Elsevier Ltd. All rights reserved.

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Year:  2013        PMID: 23291505     DOI: 10.1016/j.ridd.2012.12.004

Source DB:  PubMed          Journal:  Res Dev Disabil        ISSN: 0891-4222


  6 in total

1.  Caregiving burden and parent-child quality of life outcomes in neurodevelopmental conditions: the mediating role of behavioral disengagement.

Authors:  Carlos Carona; Neuza Silva; Carla Crespo; Maria Cristina Canavarro
Journal:  J Clin Psychol Med Settings       Date:  2014-12

2.  An evaluation of psychometric properties of caregiver burden outcome measures used in caregivers of children with cerebral palsy: a systematic review protocol.

Authors:  Jermaine M Dambi; Jennifer Jelsma; Tecla Mlambo; Matthew Chiwaridzo; Nyaradzai Dangarembizi-Munambah; Lieselotte Corten
Journal:  Syst Rev       Date:  2016-03-09

3.  Psychometric Properties of Multi-Dimensional Scale of Perceived Social Support in Chinese Parents of Children with Cerebral Palsy.

Authors:  Yongli Wang; Qin Wan; Zhaoming Huang; Li Huang; Feng Kong
Journal:  Front Psychol       Date:  2017-11-21

4.  Caregivers' Feeding Experiences and Support of Their Child with Cerebral Palsy.

Authors:  Christine Taylor; Ariana C Kong; Jann Foster; Nadia Badawi; Iona Novak
Journal:  J Child Fam Stud       Date:  2021-10-04

5.  Correlates of Caregiving Burden among Bedouin-Muslim Mothers of Children Diagnosed with Epilepsy.

Authors:  Offer E Edelstein; Talia Shorer; Zamir Shorer; Yaacov G Bachner
Journal:  Int J Environ Res Public Health       Date:  2022-09-14       Impact factor: 4.614

6.  Parent and family impact of raising a child with perinatal stroke.

Authors:  Taryn B Bemister; Brian L Brooks; Richard H Dyck; Adam Kirton
Journal:  BMC Pediatr       Date:  2014-07-14       Impact factor: 2.125

  6 in total

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