PURPOSE: The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management. DESIGN AND METHODS: Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents. RESULTS: Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care. PRACTICE IMPLICATIONS: Education about CFRD management and support of adolescent autonomy in disease management is needed.
PURPOSE: The purpose of this study was to describe the experience of cystic fibrosis-related diabetes (CFRD), parental support of adolescent self-management, and the relationship of parental autonomy support with disease self-management. DESIGN AND METHODS: Semi-structured interviews and questionnaires were employed in a study conducted with 10 adolescents and their parents. RESULTS: Parents and adolescents lacked confidence to manage CFRD. Mothers' autonomy support was associated with adolescents' CFRD competence and cystic fibrosis self-care. Fathers' autonomy support was associated with mothers' reports of adolescent cystic fibrosis self-care. PRACTICE IMPLICATIONS: Education about CFRD management and support of adolescent autonomy in disease management is needed.