Literature DB >> 23276258

Cyberhugs: creating a voice for chronic pain sufferers through technology.

Karin L Becker1.   

Abstract

Chronic pain is a pervasive and expensive public health problem affecting roughly one-third of the American population. The inability of language to accurately convey pain expressions combined with the social stigmas associated with discussing pain persuade many sufferers to remain silent about their pain. Gender politics and fear of professional repercussions further encourage silence. This article explores the need for a safe and secure place for chronic pain sufferers to talk of their pain experiences. The extent to which digital communication technology can fulfill this need is examined. This descriptive study examines the use of one online chronic pain management workshop for its ability to create an engaged community of choice. Workshop admittance was based on participants having a qualifying chronic pain condition. A thematic discourse analysis is conducted of all entries chronic pain participants posted. In addition to goal setting, participants discuss the ways in which pain affects them on a daily basis. Two themes emerge: validation and encouragement. This study suggests that chronic pain users need a discursive space to legitimate their chronic pain identity. It confirms that online websites and virtual audiences facilitate disclosure and allow for authentic communication. The benefits of computer-mediated discussion as well as its limitations are examined.

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Year:  2012        PMID: 23276258     DOI: 10.1089/cyber.2012.0361

Source DB:  PubMed          Journal:  Cyberpsychol Behav Soc Netw        ISSN: 2152-2715


  4 in total

Review 1.  The Unintended Consequences of Social Media in Healthcare: New Problems and New Solutions.

Authors:  S Hors-Fraile; S Atique; M A Mayer; K Denecke; M Merolli; M Househ
Journal:  Yearb Med Inform       Date:  2016-11-10

2.  Correlation of digital health use and chronic pain coping strategies.

Authors:  Megan L Ranney; Cassandra Duarte; Janette Baird; Emily J Patry; Traci C Green
Journal:  Mhealth       Date:  2016-09-06

3.  Identifying Patients With Inflammatory Bowel Disease on Twitter and Learning From Their Personal Experience: Retrospective Cohort Study.

Authors:  Maya Stemmer; Yisrael Parmet; Gilad Ravid
Journal:  J Med Internet Res       Date:  2022-08-02       Impact factor: 7.076

4.  Digital Pain Mapping and Tracking in Patients With Chronic Pain: Longitudinal Study.

Authors:  Maria Galve Villa; Thorvaldur S Palsson; Albert Cid Royo; Carsten R Bjarkam; Shellie A Boudreau
Journal:  J Med Internet Res       Date:  2020-10-26       Impact factor: 5.428

  4 in total

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