Literature DB >> 23260776

Developing, testing, and sustaining rehabilitation interventions via participatory action research.

Dawn M Ehde1, Stephen T Wegener, Rhonda M Williams, Patti L Ephraim, Jennifer E Stevenson, Patricia J Isenberg, Ellen J MacKenzie.   

Abstract

Few published intervention studies in the rehabilitation literature have included consumers in the research process other than as study participants. This lack of consumer involvement in intervention research may contribute to the challenges encountered developing, translating, disseminating, and sustaining evidence-based rehabilitation interventions in clinical practice. The overall objective of this article is to promote the integration of participatory action research (PAR) into rehabilitation intervention research as a mechanism for addressing these gaps. First, we outline essential components of a PAR model across 5 key phases of intervention research, specifically: agenda setting, methods, implementation, diffusion/dissemination, and sustainability. Second, we describe the use of PAR in rehabilitation intervention research within each of these phases by reviewing relevant literature and by providing an illustrative research example from a randomized controlled trial that integrated PAR throughout the research process. Finally, we conclude with a discussion of 5 specific recommendations for promoting the integration of PAR into rehabilitation intervention research.
Copyright © 2013 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

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Mesh:

Year:  2013        PMID: 23260776     DOI: 10.1016/j.apmr.2012.10.025

Source DB:  PubMed          Journal:  Arch Phys Med Rehabil        ISSN: 0003-9993            Impact factor:   3.966


  18 in total

1.  Self-management for people with multiple sclerosis: report from the first international consensus conference, november 15, 2010.

Authors:  Robert Fraser; Dawn Ehde; Dagmar Amtmann; Aimee Verrall; Kurt L Johnson; Erica Johnson; George H Kraft
Journal:  Int J MS Care       Date:  2013

2.  Utilization and patients' perceptions of the effectiveness of pain treatments in multiple sclerosis: A cross-sectional survey.

Authors:  Dawn M Ehde; Kevin N Alschuler; Travis L Osborne; Marisol A Hanley; Mark P Jensen; George H Kraft
Journal:  Disabil Health J       Date:  2015-03-14       Impact factor: 2.554

3.  Gender Differences in Psychosocial and Physical Outcomes in Haitian Amputees.

Authors:  Pey-Shan Wen; Marilys G Randolph; Leonard Elbaum; Mario De la Rosa
Journal:  Am J Occup Ther       Date:  2018 May/Jun

Review 4.  Promoting equity at the population level: Putting the foundational principles into practice through disability advocacy.

Authors:  Jagriti 'Jackie' Bhattarai; Jacob Bentley; Whitney Morean; Stephen T Wegener; Keshia M Pollack Porter
Journal:  Rehabil Psychol       Date:  2020-04-16

5.  Active Patient Engagement: Long Overdue in Rehabilitation Research.

Authors:  Samantha Louise Harrison; Dina Brooks
Journal:  Physiother Can       Date:  2015       Impact factor: 1.037

6.  A community-based participatory research approach to the development of a Peer Navigator health promotion intervention for people with spinal cord injury.

Authors:  Susan D Newman; Gwen Gillenwater; Sherwood Toatley; Marka D Rodgers; Nathan Todd; Diane Epperly; Jeannette O Andrews
Journal:  Disabil Health J       Date:  2014-05-09       Impact factor: 2.554

7.  Participatory Design of an Online Self-Management Tool for Users With Spinal Cord Injury: Qualitative Study.

Authors:  Sonya Allin; John Shepherd; Jennifer Tomasone; Sarah Munce; Gary Linassi; Saima Noreen Hossain; Susan Jaglal
Journal:  JMIR Rehabil Assist Technol       Date:  2018-03-21

Review 8.  A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature.

Authors:  F Hoekstra; K J Mrklas; M Khan; R C McKay; M Vis-Dunbar; K M Sibley; T Nguyen; I D Graham; H L Gainforth
Journal:  Health Res Policy Syst       Date:  2020-05-25

9.  Clinical and cost-effectiveness of an online-delivered group-based pain management programme in improving pain-related disability for people with persistent pain-protocol for a non-inferiority randomised controlled trial (iSelf-help trial).

Authors:  Leigh Hale; Hemakumar Devan; Cheryl Davies; Sarah Gerard Dean; Anthony Dowell; Rebecca Grainger; Andrew R Gray; Dagmar Hempel; Tristram Ingham; Bernadette Jones; William Leung; Jessica Mills; Barbara Saipe; Edward Shipton; Meredith Perry
Journal:  BMJ Open       Date:  2021-02-04       Impact factor: 2.692

10.  Disability and the COVID-19 Pandemic: A Survey of Individuals With Traumatic Brain Injury.

Authors:  Emily L Morrow; Nirav N Patel; Melissa C Duff
Journal:  Arch Phys Med Rehabil       Date:  2021-01-30       Impact factor: 3.966

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