Literature DB >> 23257618

"Seeing" in NARCOMS: a look at vision-related quality of life in the NARCOMS registry.

Amber R Salter1, Tuula Tyry, Timothy Vollmer, Gary R Cutter, Ruth Ann Marrie.   

Abstract

BACKGROUND: Research on vision-related quality of life (QOL) in multiple sclerosis (MS) is still limited. Tools such as the Visual Functioning Questionnaire-25 (VFQ-25) and the Vision Performance Scale (VPS) facilitate assessments of the severity of visual impairment and its impact on daily life.
OBJECTIVE: The objective of this paper is to examine vision-related QOL, comorbid eye conditions, use of visual aids and utilization of eye-care providers in the North American Research Committee on Multiple Sclerosis (NARCOMS) population, and to explore these issues in those with a history of optic neuritis (ON) and diplopia.
METHODS: In 2008, NARCOMS registrants reported on their use of visual aids, the VFQ-25, VPS, history of ON, diplopia, refractive error conditions (REC) and comorbid eye diseases (CED). We conducted regression analyses and correlations between select variables.
RESULTS: The response rate for the survey was 60.4%. Of the 9107 responders, 66.7% reported visual disability measured by VPS. Of respondents, 43.1% had a history of ON and 38.6% reported prior diplopia. Frequencies of myopia (51.8%), hyperopia (26.6%), and uveitis (3.4%) exceeded those expected for the general population. Mean (SD) VFQ-25 composite score was 82.0 (14.2). A history of ON or diplopia accounted for 9.7% of the variance in the VFQ-25; 90.6% of respondents used glasses or contact lenses. Rates of utilizations of eye-care providers were lower than expected.
CONCLUSION: Prior ON, diplopia, REC and CED adversely impact vision-related QOL in MS. Increased utilization of eye-care providers and use of visual aids could improve vision-related QOL in people with MS.

Entities:  

Keywords:  MS; Multiple sclerosis; cohort studies; health care utilization; quality of life; vision

Mesh:

Year:  2012        PMID: 23257618     DOI: 10.1177/1352458512469694

Source DB:  PubMed          Journal:  Mult Scler        ISSN: 1352-4585            Impact factor:   6.312


  13 in total

1.  Perceived stress in multiple sclerosis: the potential role of mindfulness in health and well-being.

Authors:  Angela Senders; Dennis Bourdette; Douglas Hanes; Vijayshree Yadav; Lynne Shinto
Journal:  J Evid Based Complementary Altern Med       Date:  2014-02-20

Review 2.  The incidence and prevalence of comorbid gastrointestinal, musculoskeletal, ocular, pulmonary, and renal disorders in multiple sclerosis: a systematic review.

Authors:  Ruth Ann Marrie; Nadia Reider; Olaf Stuve; Maria Trojano; Per Soelberg Sorensen; Gary R Cutter; Stephen C Reingold; Jeffrey Cohen
Journal:  Mult Scler       Date:  2014-12-23       Impact factor: 6.312

Review 3.  A systematic review of the incidence and prevalence of autoimmune disease in multiple sclerosis.

Authors:  Ruth Ann Marrie; Nadia Reider; Jeffrey Cohen; Olaf Stuve; Per S Sorensen; Gary Cutter; Stephen C Reingold; Maria Trojano
Journal:  Mult Scler       Date:  2014-12-22       Impact factor: 6.312

4.  Physical and mental health comorbidity is common in people with multiple sclerosis: nationally representative cross-sectional population database analysis.

Authors:  Robert J Simpson; Gary McLean; Bruce Guthrie; Frances Mair; Stewart W Mercer
Journal:  BMC Neurol       Date:  2014-06-13       Impact factor: 2.474

Review 5.  Vision and vision-related outcome measures in multiple sclerosis.

Authors:  Laura J Balcer; David H Miller; Stephen C Reingold; Jeffrey A Cohen
Journal:  Brain       Date:  2014-11-28       Impact factor: 13.501

Review 6.  A systematic review of the incidence and prevalence of comorbidity in multiple sclerosis: overview.

Authors:  Ruth Ann Marrie; Jeffrey Cohen; Olaf Stuve; Maria Trojano; Per Soelberg Sørensen; Stephen Reingold; Gary Cutter; Nadia Reider
Journal:  Mult Scler       Date:  2015-01-26       Impact factor: 6.312

7.  Item response theory-based measure of global disability in multiple sclerosis derived from the Performance Scales and related items.

Authors:  Eric Chamot; Ilya Kister; Gary R Cutter
Journal:  BMC Neurol       Date:  2014-10-03       Impact factor: 2.474

8.  Predictors of vision impairment in Multiple Sclerosis.

Authors:  Bernardo Sanchez-Dalmau; Elena H Martinez-Lapiscina; Irene Pulido-Valdeolivas; Irati Zubizarreta; Sara Llufriu; Yolanda Blanco; Nuria Sola-Valls; Maria Sepulveda; Ana Guerrero; Salut Alba; Magi Andorra; Anna Camos; Laura Sanchez-Vela; Veronica Alfonso; Albert Saiz; Pablo Villoslada
Journal:  PLoS One       Date:  2018-04-17       Impact factor: 3.240

9.  Therapy optimization in multiple sclerosis: a prospective observational study of therapy compliance and outcomes.

Authors:  Patricia K Coyle; Bruce A Cohen; Thomas Leist; Clyde Markowitz; MerriKay Oleen-Burkey; Marc Schwartz; Mark J Tullman; Howard Zwibel
Journal:  BMC Neurol       Date:  2014-03-13       Impact factor: 2.474

10.  Retinal atrophy in relation to visual functioning and vision-related quality of life in patients with multiple sclerosis.

Authors:  Lisanne J Balk; Danko Coric; Jenny A Nij Bijvank; Joep Killestein; Bernard Mj Uitdehaag; Axel Petzold
Journal:  Mult Scler       Date:  2017-05-17       Impact factor: 6.312

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