| Literature DB >> 23227321 |
Elizabeth Kendall1, Michele M Foster, Carolyn Ehrlich, Wendy Chaboyer.
Abstract
Recent shifts in health policy direction in several countries have, on the whole, translated into self-management initiatives in the hope that this approach will address the growing impact of chronic disease. Dominant approaches to self-management tend to reinforce the current medical model of chronic disease and fail to adequately address the social factors that impact on the lives of people with chronic conditions. As part of a larger study focused on outcomes following a chronic disease, this paper explores the processes by which a chronic disease self-management (CDSM) course impacted on participants. Five focus groups were conducted with participants and peer leaders of the course in both urban and rural regions of Queensland, Australia. The findings suggested that outcomes following CDSM courses depended on the complex interplay of four social factors, namely, social engagement, the development of a collective identity, the process of building collaborative coping capacity, and the establishment of exchange relationships. This study highlights the need for an approach to self-management that actively engages consumers in social relationships and addresses the context within which their lives (and diseases) are enacted. This approach extends beyond the psychoeducational skills-based approach to self-management into a more ecological model for disease prevention.Entities:
Year: 2012 PMID: 23227321 PMCID: PMC3512329 DOI: 10.1155/2012/282671
Source DB: PubMed Journal: Nurs Res Pract ISSN: 2090-1429
Focus group participants.
| No. of focus groups | No. of participants | Gender | ||
|---|---|---|---|---|
| Male | Female | |||
| Urban participants | 2 | 16 | 2 | 14 |
| Rural participants | 2 | 11 | 4 | 7 |
| Peer leaders | 1 | 7 | 0 | 7 |
|
| ||||
| Total | 5 | 34 | 6 | 28 |
Focus group prompt questions.
| Overall satisfaction with the program | Overall, how satisfied are you with the program? |
|---|---|
| What has been the impact (if any) of the program on your life? | |
| Perceptions and experiences of orientation, education, and training | How well were you informed about the program when you first joined? |
| What did you know about the program before you commenced? | |
| What were some of your expectations about the program? | |
| Overall, how satisfied have you been with the training you received? | |
| Overall, how satisfied have you been with the postprogram followup? | |
| What type of support (if any) have you received after program? | |
| Are there any difficulties you experienced while participating in the program? | |
| What strategies did you use to overcome these difficulties? | |
| What kept you coming each week? | |
|
| |
| Perceived impact of the program | Has the program had an impact on |
| the way you manage your condition/s? | |
| your lifestyle in general? | |
| How has it changed your lifestyle? | |
| What are some of the supports/strategies you have used yourself (or are necessary) to make this impact last? | |
| To what extent did the program leaders answer your questions? | |
| To what extent do you feel that the program leader gave you adequate information about your condition/s? | |
| Overall, how would you describe the quality of the program leader | |